September is TTP Advocacy Month in Canada!
As a small geographically dispersed patient population across Canada, we need everyone (and their supporters), in jurisdictions across Canada, to help in this life-saving campaign. Access to healthcare in Canada is provincial/territorial. We need your voice.
This meeting will focus on our SEPTEMBER ADVOCACY ACTIVITIES. We need everyone to ----
1) take 2 mins to fill out an online form to request a meeting with your MPP. This is a virtual meeting we can attend with you, but we can't coordinate it without you - we can't make change in your jurisdiction without your action. Your role in the meeting is to share your story, and you know it best! From there we will drive the conversation to the "ask" regarding access to caplacizumab. A bit nervous? We will provide extensive optional support in the form of a written toolkit and virtual preparation meetings.
2) share, like and retweet our educational and advocacy posts on our social media channels (FB and Twitter).
Come out (and "bring" your supporters) on September 8, at 5:30pm for a tour of our advocacy toolkit and sneak peak at the social media posts we have planned. It doesn’t matter if you’ve attended a meeting before – we’d love to have you join us! We will catch you up.
The session will continue to provide context and education regarding the advocacy process and how individuals (like you, your family and friends) are needed to propel our cause forward. We will share our next steps for the months ahead as we continue our journey towards achieving publicly-funded access to caplacizumab. We’ll also be available to answer any questions you may have, whether it be related to advocacy, government or anything else.
Caplacizumab was approved by Health Canada in 2020, but is not funded for use in Canada despite being a standard of care in peer nations. Caplacizumab is our only immediate defense against the potentially life-altering blood clots that characterize a TTP crisis.