Seven organizations have submitted a proposal to the National Center for Health Statistics (NCHS) to add ME/CFS to the neurological chapter of the ICD-10-CM where myalgic encephalomyelitis and postviral fatigue syndrome are located.
The organizations submitting this proposal include: #MEAction, Open Medicine Foundation, Solve M.E., International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, Massachusetts ME/CFS & FM Association, PandoraOrg, and the Minnesota ME/CFS Alliance.
This listening session is open to all and will be attended by organization representatives to facilitate open dialogue and build consensus for this new proposal.
Note: This session will focus only on the proposal submitted to the National Center for Health Statistics to revise the coding of ME/CFS in the ICD-10-CM. The ICD-10-CM is the system used to code diseases in medical records and is used to track mortality and morbidity. The session will describe how ME/CFS is currently coded, the impact of that situation, and the change requested by the seven organizations in their proposal. It will not discuss medical education, strategies to address the stigma, treatment options, research priorities, or what the research tells us about the pathology of the disease.
For more information about the proposal, visit our FAQ page: https://rb.gy/jm1n1k