Join us for an evening of medical and financial information, resource sharing and tips and the opportunity to meet other families with PWS. OPWSA is hosting a New Diagnosis and Toddler online event to support parents, grandparents or any family members caring for children diagnosed with PWS ages 0-3 years old.
Navigating the early years of a rare disease diagnosis can be exhausting and overwhelming. OPWSA is bringing together a small group of knowledgeable and experienced parents Kristina MacDonald (Ellie, 3.5 yrs old), Holly Sine (Jack, 7 yrs old), PWS medical professional Dr. Sanjukta Basak (Kindercare PWS clinic) along with Executive Director Jennifer Coens (OPWSA ED since 2016).
We hope you can join us for an informative, supportive and inclusive online event. There will also be an opportunity to break out into groups based on areas of focus/interest of PWS care that is most important to your family at this time. We encourage you when you register to share what topics and any specific questions you have so we can prepare in advance of the online event.
This event is FREE and anyone in your family is welcome to attend. Please have each member register separately. This event is for families with children 0-3 years of age diagnosed with PWS.