Throw those dancing shoes on with us at 4PM ET during World Duchenne Awareness Day! We will welcome Hulda Björk for a quick and exciting dance session via Zoom!
Hulda is a mother of three children from Iceland. Her youngest son, Ægir Þór, has Duchenne muscular dystrophy. They have danced with friends, family, famous artists, nonprofit Duchenne organizations, the Prime Minister of Iceland, other Duchenne families, world class athletes, and hopefully all of you on September 7! They dance to raise awareness, spread joy, and to share hope.
For the benefit of our Duchenne community members worldwide, this public event will be recorded, as well as live-streamed, across various digital platforms. By joining this session, you consent to be recorded and broadcast publicly. Footage from this event may be used in perpetuity for marketing and educational purposes of Jett Foundation.