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Sibling Kit Webinar - Laurie Bailey, Zogenix - Shared screen with speaker view
Randie Cadigan
23:11
how do we get the toolkit?
Misty Ried
23:49
The sibling kit?
Randie Cadigan
28:19
yes! TY
Misty Ried
30:01
The link will be found on the DSF website. Laurie will also post it at the end of this webinar.
Misty Ried
30:34
www.dsfsupersibs.org
Nicole Murray
40:49
You're awesome, Ally!
Xian Sun-ilmonen
44:18
Is there a way to get these kits over to Europe yet? We’re willing to pay shipping
Nicole Murray
45:11
I love the sib love notes.
Morgan Turpin
45:39
these kits are amazing!
Cara Nunn
50:21
My daughter (my non DS kid) has sat here watching the presentation with me. She said the kit was super cool.
Cara Nunn
51:17
She's 11.
Deepa Dahal
51:34
Are you able to share the original survey and results? Where can we find this?
Jean Ortiz
52:46
Would love to see some of this data incorporated into Dravet Syndrome Awareness factoids shared on social media. So many people don’t understand how profoundly Dravet affects our family.
Jean Ortiz
55:02
I think we need something more graphic style so more people will read. I don’t have many people in our life who would watch a presentation :(
Jean Ortiz
55:32
I am so EXCITED about these kits! :D
Jean Ortiz
56:40
Yay! Thank you!
Christine Brann
57:19
Thank you for all you do for our super siblings and our families!