how do we get the toolkit?
The sibling kit?
The link will be found on the DSF website. Laurie will also post it at the end of this webinar.
You're awesome, Ally!
Is there a way to get these kits over to Europe yet? We’re willing to pay shipping
I love the sib love notes.
these kits are amazing!
My daughter (my non DS kid) has sat here watching the presentation with me. She said the kit was super cool.
Are you able to share the original survey and results? Where can we find this?
Would love to see some of this data incorporated into Dravet Syndrome Awareness factoids shared on social media. So many people don’t understand how profoundly Dravet affects our family.
I think we need something more graphic style so more people will read. I don’t have many people in our life who would watch a presentation :(
I am so EXCITED about these kits! :D
Yay! Thank you!
Thank you for all you do for our super siblings and our families!