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GCA Video Premier - Shared screen with speaker view
Pierre Joly
25:11
Hello everyone. Greetings from Timmins Ontario Canada. I hope everyone's evening or afternoon is as great as mine is starting
Emma Rooney
43:48
Great to watch it together!
Theresa Sweeney
44:31
That was wonderful. Thank you to all who participated!
Aviva Rosenberg
44:32
Please share: https://youtu.be/nAYWAfivP1s
Gary Frohlich Frohlich
44:37
Congrats! to the GCA and all the people thriving with Gaucher and living their very best life.
Aviva Rosenberg
45:18
If anyone would like to donate: https://www.gauchercommunity.org/get-involved/donate/
Aviva Rosenberg
45:32
So we can continue supports programs for our community.
Pierre Joly
46:12
an absolutely amazing video. I am sharing right away on my personal facebook as well as my book page
Aviva Rosenberg
46:46
Link: https://youtu.be/nAYWAfivP1s
Theresa Sweeney
47:35
We appreciate you, Adam!! So love having your support to spread awareness!
Christina Kurtz-Clark
47:45
this is terrific! tx We now have a quick easy wzy to show what Gauchers is.
Ginger N
49:15
yes, I’d like to contribute my story. Not sure how to do this. Ginger
Leslie Kucharczyk
50:54
Amazing!!! I'm still in tears from the heart-breaking parts, but there's so much hope from all the rest! Seeing is believing. I hope Gaucher awareness spreads esp. among medical professionals, from seeing so many patients of all genders, colors and ages and from so many countries.
Leslie Kucharczyk
52:32
I'm Type 1, and my infusions are every 3 wks. Not as few sticks as every 4, but better than every 2.
Pierre Joly
52:32
i got myself an apple watch so my wrist would remind me when to take my Zaveasca. 3 times a day was harder then when I was on the Cerdelga trial
Diana Paulina Aragón
53:40
Wow!!
Pierre Joly
55:07
Aviva, you are totally right. we are not alone. together we have a very powerful voice.
Aviva Rosenberg
56:16
Here’s the Link again: Link: https://youtu.be/nAYWAfivP1s
Aviva Rosenberg
57:04
And to share if anyone or family and friends want to donate for Gaucher Awareness Month: https://www.gauchercommunity.org/get-involved/donate/
Aviva Rosenberg
01:00:38
Short video: https://youtu.be/XJo9vnH1rvg
Leslie Kucharczyk
01:01:08
Thank you all so much for your fine work, and especially the enthusiasm!!