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Coronavirus Information - Self-Advocates Connecting - Shared screen with speaker view
Mark Knight Dixon
05:33
I did some self advocacy to change a policy.
Lee Reilly
06:00
That's great Mark. Where was the policy?
Mark Knight Dixon
10:14
In Virginia, we have a Medicaid waiver system so that people can stay in their communities rather than institutions. The Olmstead Act wanted to keep people out of institutions such as nursing homes and allow them to stay in their communities. The Arc had me writing the federal judge, John Gibney to oppose the US versus Virginia settlement so people can stay in their communities rather than institutions.
Mark Knight Dixon
20:10
I was a self advocate in high school. I helped developed my IEP during my junior year. My parents were concerned about my geometry class. My mother wanted to teach me geometry at home since she was a certified math teacher in the school system where I live. I went to his guidance counselor at the local high school. She called the schoolboard office and the assistant superintendent of instruction approved that Mom could teach me geometry via an independent study.
Cindy Ruder
20:57
That's great advocating Mark!
Karen Topper
21:05
Another great example - thanks Mark for sharing
Don OCallaghan
22:17
Great that this is happening in High School now.
Karen Topper
22:24
Sometimes it is hard for special educators to step back and let students play a lead role in running their IEP
Danielle Underwood
23:39
You can find Julian's youth survey questions at: https://selfadvocacyinfo.org/resource/engaging-youth-in-the-self-advocacy-movement/
Mark Knight Dixon
23:58
I even went to the IEP meeting and stamped my signature in the IEP that Mom would teach the class as long as I did the work.
Don OCallaghan
25:24
Not having an ally is a big barrier.
Mark Knight Dixon
26:04
But we had to pay for the course. We used a correspondence high school in Illinois and Mom covered the Virginia Standards of Learning.
Joseph Damiano,Allegany Arc
26:22
Hi mark
Don OCallaghan
26:41
What about having Zoom access to Self Advocacy meetings?
Cindy Ruder
27:11
We're having self advocacy meetings via zoom in Sacramento CA!
Joseph Damiano,Allegany Arc
27:11
I would say in regards to Don's question some too but most don't I have found
Jessica Shouse
27:36
We are starting to see more groups using Zoom here in Colorado. I hope it continues to grow.
Lindsay B
27:57
I like the idea about co presenting
Don OCallaghan
28:00
It would increase Self Advocacy participation dramatically.
Joseph Damiano,Allegany Arc
28:15
i agree don
Cindy Ruder
28:31
Zoom meetings have been a nice way for self advocates to check out chapter meetings in different areas; not just the ones that are geographically close to them. And they've provided important support during COVID
Mark Knight Dixon
28:39
This really saved the school system money.
Cindy Ruder
29:03
The tip sheet has great info!
Don OCallaghan
29:53
We can include people with medical issues that don't allow them to travel.
David
30:55
same way I got involved my parent told me about the group
Mary Angus-she/hers
32:25
The schools are required to do transition planning and activities anyway and vocational rehabilitation agencies have funding
Mark Knight Dixon
34:03
I did not have any transition plan when I left high school. I went to one of the local Centers for Independent Living in Norfolk, Virginia and they suggested I graduate and get on the state Medicaid waiver system.
Lindsay B
34:22
Exactly always speak up!
steve barsh ahrc
34:36
hi all steve barsh newyork cedahurst Nassau ahrc
steve barsh ahrc
34:42
work
Joseph Damiano,Allegany Arc
35:20
hi Joseph Damiano Peer Support Specialist Allegany Arc NY
Joseph Damiano,Allegany Arc
35:30
Wellsville,NY
Mary Angus-she/hers
36:58
Mary Angus with the LEND program as the Self Advocate Faculty and Leadership training on a grant from the DD Council in Omaha, NE and People First of Nebraska
David
37:13
self advocates moments can mean and support more groups then just people with disabilitys
Mark Knight Dixon
39:12
The local Center for Independent Living has provided some services through an outreach program in the underserved area where we live and I am able to go to their office in the underserved area we live and get information about services.
Danielle Underwood
39:33
Awesome, Julian!
Joseph Damiano,Allegany Arc
39:33
i am so proud of what you become Julian
Mary Angus-she/hers
39:39
Youth in self advocacy is needed to keep the momentum going when old folks like me run out of energy
Teresa Moore
39:59
People First of Arizona is modeling their meeting after this one. One time a month we talk about meeting about our lives and plan. The other is our virtual community meeting with a topic they choose. They started small to learn and teach zoom. We are supported by our independent living center with an advisor this is critical. Self Advocates also serve as advisors for grants and vote training.
Mark Knight Dixon
40:10
I have gotten a lot of valuable information.
Don OCallaghan
40:20
Peer Advocates are important in the development of services.
Lindsay B
40:31
Im Lindsay Brillhart I work with TASP The Association For Successful Parenting I am from Cincinnati OH
Candace Cunningham
40:45
Awesome job Julian!!
Joseph Damiano,Allegany Arc
40:46
i am a peer support specialist kind of like a peer advocate
Lindsay B
41:06
Yes good Job Julian!!!!!
Mary Angus-she/hers
41:10
People First of Nebraska and it's Chapters are doing frequent meetings like this too...
theamazinj
41:11
I am starting a youth group this month for the ILC I work at in my area as a self-advocate I am . What is your advice on the first meeting I can do during this meeting as a host?
Joseph Damiano,Allegany Arc
41:13
if you have any questions julian let me know
Natasha Cole
42:20
From Natasha Cole Julian have you attended SA groups in your state and give presentatons
John McCarty
42:25
Great job Julian
David
42:27
self advocates group can also be apart of the GLBTQIA GROPS IN THE UNITED STATES
theamazinj
42:30
This is Jason
Don OCallaghan
42:36
What about using technology to reach out to the many people who can't get to meetings?
Joseph Damiano,Allegany Arc
43:00
i am trying to call people and wouldn't object to doing that
Mark Knight Dixon
44:31
For example, in Virginia, they were charging $3.25 a month to administer an ABLE savings account through PNC Bank. I talked to a lady at the local center for independent living and she suggested I transfer to Fidelity Investments, which is a bank out of Massachusetts and I told my parents that this lady suggested I transfer to Fidelity Investments.
Don OCallaghan
44:52
Adding classes in orientation that are taught by Self Advocates about technology.
Joseph Damiano,Allegany Arc
45:06
that's awesome mark and i also might do that idk i will figure it out
Mary Angus-she/hers
45:31
Yes David...with zoom becoming the in thing, we now know more friends who are GLBTQIA and have already been accepted
Mary Angus-she/hers
45:40
If that makes any sense
Mark Knight Dixon
45:54
I transferred to Fidelity and I have not been losing money.
Joseph Damiano,Allegany Arc
46:12
Thanks for your input Mark
David
46:27
I AM THE FONDER OF THE GLBTQIA GROUP IN VERMONT
Mary Angus-she/hers
46:52
Good for you David...I'd like to know more
David
47:28
PLEASE EMAIL ME SOMETIME dave6262002@yahoo.com
Mary Angus-she/hers
47:44
thanks
Don OCallaghan
47:45
Transportation is a major reason people can't get to Self Advocacy meetings. Technology fixes that.
Mark Knight Dixon
48:00
Whenever they charge a ,maintenance fee, you lose money unless you have $10,000 to wave that maintenance fee.
Lindsay B
48:51
How did you get involved with Sartac for this?
Mark Knight Dixon
49:12
I would suggest that you start with the ABLE money market fund.
Jessica Shouse
49:33
We do sometimes run into the issue then becoming not having the needed technology or internet access. There seems to be lots of grant money available to help with this however.
Lindsay B
50:22
Mark For SARTAC?
Mark Knight Dixon
50:55
I am talking about ABLE accounts.
Lindsay B
51:11
Ok
Courtney Hineman
51:17
Hi Lindsay I'm from Hamilton Ohio I just emailed Karen Topper to get the links for the SARTAC Zoom meetings
Don OCallaghan
52:51
Getting technology is often very easy. Many of us have experience with this. We need to work together more and share information more.
theamazinj
53:41
Email me at jross@bridgesrc.org for anyone who has suggestions for me for my youth group. Jason Ross
Don OCallaghan
53:55
Assurance Wireless gives free smart phones to people who get SSI.
Mark Knight Dixon
54:04
Some cable companies have a way that if your child is enrolled in the National School Lunch program, you can get low-cost Internet and a computer.
theamazinj
54:06
Very cool!!
theamazinj
54:37
Belinda, can you email me?
Mark Knight Dixon
54:59
Safelink Wireless gives free access to smart phones.
Don OCallaghan
55:10
People can use free WI FI with a free phone.
Cindy Ruder
56:33
Re: free smart phones...do you know people who have been able to get on zoom meetings with the free phones? The people I know who have free phones have had difficulty getting on zoom
Courtney Hineman
56:47
Jason, I recognize your email were you involved in SDS? Society for Disability Studies
theamazinj
57:01
Yes, I still am!
Don OCallaghan
57:07
Yes I can get on this meeting right now with a free phone.
Cindy Ruder
57:20
Thanks Don!
Mark Knight Dixon
57:31
You can get access to Zoom meetings if you have the Zoom app.
Lindsay B
57:57
Data eats up for people to get on all the time
Lindsay B
58:23
Btw topper I love your sweater!!!!
Courtney Hineman
58:35
Awesome! Thank you Jason, I was involved in it when I took a Disability Studies class at Miami University
Cindy Ruder
58:40
I think it might be a problem with slow connection speeds in some communities
theamazinj
59:13
Very cool, Courtney!
Sue Moriarty
59:43
I went to parent advisory councils.
Mark Knight Dixon
59:58
Just download the Zoom app from the Apple app store or Google Play store.
Lindsay B
01:00:04
Awesome Courtney!
Sue Moriarty
01:00:36
The power of personal connections is so important, right?
Danielle Underwood
01:00:54
Great point, Julian! It's good to start with the people who already know you and can help you connect with others
theamazinj
01:00:59
Yes, it is
Courtney Hineman
01:01:48
Thanks Lindsay, What exactly is TASP?
Don OCallaghan
01:01:51
Yes
Cindy Ruder
01:02:33
Thanks Don :)
Lindsay B
01:03:19
Its the Association for Successful Parenting for people who have disabilities to be successful parenting with the help that they need
Joseph Damiano,Allegany Arc
01:03:32
hey can julian or Jessica send me the power point. My email is jdamiano@alleganyarc.org along with any notes you hav
Joseph Damiano,Allegany Arc
01:05:14
is that possible?
Julian Wang
01:05:26
Yes
Joseph Damiano,Allegany Arc
01:05:35
Thanks Julian
Lindsay B
01:05:39
I can send you the website in email Courtney if your interested
theamazinj
01:06:49
Ok great!!!!
Mark Knight Dixon
01:06:52
I just learned that self advocacy is required for students transitioning from high school. A lot of people need the training. The Arc of Wisconsin is working on a $400 self advocacy training course.
Blue Daniel Kim
01:07:37
Sorry I have to go
Courtney Hineman
01:07:44
Yes, Lindsay my email is crhineman@butlerdd.org
Mark Knight Dixon
01:08:07
The Arc of Wisconsin has a grant for Medicaid to pay for it.
Lindsay B
01:08:23
Ok I'll get it to you tomorrow or Wednesday:)
Courtney Hineman
01:08:46
Okay Thank you Lindsay!
Don OCallaghan
01:08:56
Don OCallaghan donability@gmail.com regarding getting technology to Self Advocates.
Lindsay B
01:10:23
How did you get involved with SARTAC?
Mary Angus-she/hers
01:10:41
Self Advocacy training is also required for people working in sheltered workshops (god forbid) 6 months after starting there and then annually after that...it is mandated under the Workforce Innovations and Opportunities Act of 2014...My hope is that it can be a way for people to advocate for real jobs. There are a lot of requirements in WIOA
Lee Reilly
01:11:36
You can go to selfadvocacyinfo.org to check out more about SARTAC. Also, you can find SARTAC on FaceBook.
Mark Knight Dixon
01:11:36
I got involved with SARTAC through the National Council of Self Advocates with the Arc.
Mary Angus-she/hers
01:11:53
Are any of you able to get into the schools?
Jessica Shouse
01:12:47
We are not able to go into the schools physically now but our conversations continue to happen virtually.
Danielle’s iPad
01:13:00
this is danielle viau I have to go my nieace is working with me today and is leaving at 2:30
Cindy Ruder
01:14:13
Very helpful info, and great resources. TY!!
Lindsay B
01:15:29
Thanks that helps out
Lindsay B
01:17:16
Thanks Mark
Lindsay B
01:17:39
Ty Lee
Mark Knight Dixon
01:20:29
If you have an ABLE account and put the money into an ABLE account, it will not impact your benefits.
Lee Reilly
01:20:36
peoplefirstofwashington.org
Sue Moriarty
01:20:38
Thank you!! Really helpful!
Courtney Hineman
01:20:52
Thank you Julian!!