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Does Your Education Team Presume Competence in Your Autistic Student? - Shared screen with speaker view
Neelam M.
17:00
That was wonderful, Maria! Thank you for sharing.
Maria Ott
17:30
Thank you!
Ingrid Ventura Ellis
17:36
Thank you for sharing Maria…
Sue Keisler
19:46
I’m sorry we can’t get the closed captioning reinstated in this meeting.
Terra Vance
26:18
That was amazing!
Sarah Selvaggi Hernandez
26:22
THANK YOU! 💕
Laura Gordon, xMinds Board President
26:23
Thank you so much, Lisa V!!!
A1 Susan Quack
26:27
Thank you.
Pamela Talley
26:29
Thank you !!
Phaedra Taiarol
26:31
Thank you so much, Lisa! You were wonderful!
Alexander Von Nordheim
26:36
Brilliant!
Kayla Beckert
26:37
Thank you, Lisa! That was beautifully expressed.
Krista Perleberg
26:41
thank you Lisa!
Neelam M.
26:43
You are amazing, Lisa!
Laura Gordon, xMinds Board President
26:47
Feel free to enter any questions in the chat for our panelists!
wendylesko
26:56
Wow Lisa you inspire and teach us Thx you
Kate Jones she/her
26:57
that was amazing, thank you!
Brittania Hebeler
26:59
Thank you- that was amazing!
Angela
26:59
so good Lisa, thank you!
R. O.
27:01
So proud of you, Lisa!
Linda Lally
27:11
Thank you Lisa for sharing your story.
Scot Marken
27:13
Thank you so much for sharing your story. You are incredible!
Rose Chand
27:20
thank you Lisa ,you are a very impressive student .
Natalia Ahn
28:06
Incredible Lisa! Thank you for sharing your story and congratulations on all your successes! So many more to come!
iPhone Vance
28:16
Thank you Lisa. Your story is amazing!
Damon
28:26
Thank you for your excellent presentation, LIsa! I am a guy who types, so feel I am a kindred spirit.
Jessica Harris
28:42
Thank you Lisa for sharing your story.
Terra Vance
30:32
That was amazing, Gordy!
Sarah Selvaggi Hernandez
30:35
Gordy, it's not too much to ask for! thank you!
AmyAllnutt
30:40
Awesome Gordy!
Laura Gordon, xMinds Board President
30:44
Thank you, Gordy!
Alexander Von Nordheim
30:44
Gordy, you're brilliant, and I'm lucky to know you.
Phaedra Taiarol
30:47
Thank you, Gordy!
Krista Perleberg
30:48
thank you Gordy
Kayla Beckert
30:50
Thank you, Gordy, for letting us know how you feel!
Neelam M.
30:52
Thank you so much, Gordy!
Alyson Toll
30:52
Great job Gordy!!
Bonnie Byrd
30:57
Lisa and Gordy! Great job and thank you for sharing
Damon
31:00
Gordy, so great! Thank you, sir
Natalia Ahn
31:03
Thank you Gordy! You are inspiring!
Ingrid Ventura Ellis
31:03
Thank you Gordy
R. O.
31:17
Thank you for sharing, Gordy!
Swapna
31:27
Great job Lisa and Gordy. thank you for sharing your thoughts us.
Angela
31:29
No it is not too much to ask for Gordy, thank you for sharing your story
Bert Levy
31:34
Thank you, Gordy! I know you will find teachers one day who will appreciate your brilliance and assume competence!
wendylesko
32:23
Bravo Gordon on your ongoing advocacy!
Jessica Harris
33:30
So grateful to hear the stories of these amazing young people. Thank you Gordy for sharing with us.
Kayla Beckert
33:57
I love your website, Ms. Vance. Thank you for your service.
Melissa Egan
34:07
For Lisa: How do you approach your teachers to tell them that you are non-speaking? How did you let your peers at Montgomery College and Washington Adventist College know how they could help you?
Melissa Egan
39:16
For Gordy: What helps you stay regulated during the school day? Does it help you to be able to move around during virtual learning, stand instead of sitting, etc. How do you advocate for yourself to your teachers?
Laura Gordon, xMinds Board President
39:37
If you have any questions for any of our panelists, please feel free to enter them here.
Natalia Ahn
40:23
Gordy, what is your favorite way to relax?
Sarah Selvaggi Hernandez
43:57
interdependence 💕 I love that reframe.
Gordy Baylinson
44:19
I stay regulated by pacing and jumping. I sit but it is hard. I wrote a letter to my professor telling her about my accommodations
Melissa Egan
44:45
Thank you, Gordy!
Gordy Baylinson
45:13
I like to watch tv and movies
Natalia Ahn
45:50
Me too Gordy!
Natalia Ahn
47:14
My son is 5, Autistic, and non-speaking. He just got his first device and is communicating through pictures. What would be your best piece of advice for him?
Lisa Vallado
47:40
I send emails to all my professors before classes start each semester. And at some point, we meet in their office to further clarify their questions. I let the professors share with the class how I communicate, and they usually are kind and respectful. For some professors, keeping track of my comments in the chatbox is easy, but others just ask a student to keep track of the chat. I had several classmates that were my lab partners, and it always worked fine.
Melissa Egan
48:36
Thanks so much, Lisa. You've been very proactive!
Ofra Don
48:51
To Lisa and Gordy: do you have any advice on finding communication partners that are able to support your way of communicating?
Lisa Vallado
49:50
Thats is my biggest challenge. I still struggle with that.
Gordy Baylinson
49:57
He should try to spell to open up his world
Natalia Ahn
50:22
That's great. Thank you!
Damon
50:35
Terra, so glad you were able to recognize competence in your students. It is so difficult for people to reconcile that the exterior presentation might hide a competent human being.
Kayla Beckert
51:12
For Lisa, I really appreciate you telling your story.
Gordy Baylinson
51:46
I don’t know. It is hard to find good people
Sarah Selvaggi Hernandez
53:38
Terra, this is important. We are the experts of of our competence. THANK YOU!
Neelam M.
53:44
Thank you, Terra! I love the website.
Terra Vance
53:58
Damon! I'm a huge fan of you!
Damon
53:58
Terra, I wonder how autistic people can tackle the issue of knowledge and understanding without being disrespectful to people who are actually ID?
Kayla Beckert
53:59
For Lisa, would you be comfortable telling us more about how you feel about being ignored? Also, do you have any advice for teachers on how we might better pay attention to our students who do not speak and who are not given AAC due to lack of diagnosis or supports?
Terra Vance
54:08
Your writing is amazing!
irenemansfield
54:59
Thank you everyone, this has been wonderful
Damon
54:59
I asked the question to Terra re: intelligence because it comes up when I have been denied access to education. I am nonspeaking, but do type my thoughts
Phaedra Taiarol
55:01
Thank you for sharing your experience, Terra!
Regina
55:44
Great job Terra! Very helpful for an educator. I will seek resources from your website.
Jessica Harris
56:10
Lisa and Gordy what is something that you wish your special educators/case managers wish they knew that would have better supported you during you elementary school years?
Arun and Rose Chand
56:20
Tara could i get the web site you referred to
Arun and Rose Chand
56:38
sorry Terra
Gordy Baylinson
56:59
Care.com, indeed.com. It takes a lot of practice
Damon
57:19
Yes, Terra, we are fans of one another!
Lisa Vallado
57:33
Some communication partners just do not work and some work great but schedules changes and they are not available any longer.
Terra Vance
57:43
Damon, that's a very important question. We have to toss our ideas about ID and what that means unless someone is in a coma. We approach each individual and try to meet them where they are and troubleshoot by working with them.Not every nonspeaking person is going to be a prolific writer. Sometimes, spelling to communicate is not going to work for them, but there are other ways to figure out what they can do and then just work on refining those to make them more accommodating and give more options for expression.
Kate Jones she/her
59:25
Lisa, what makes a great communication partner?
Kayla Beckert
59:34
https://Neuroclastic.com
Damon
01:00:58
Thank you, Terra!
Gordy Baylinson
01:01:21
I wish that elementary teachers knew that I was smart. I was very ready to learn but my body was not
Jessica Harris
01:02:02
Thank you Gordy!!
Lisa Vallado
01:02:15
A great communication partner is someone that is open to learn with you and it is not trying to change you. It is patient, kind, respectful, and fun.
oz papa
01:02:16
any tutoring services that you would recommend? so far I was unable to find anyone willing to work with my child. once I mention the diagnosis, the conversation ends within seconds.
Terra Vance
01:02:37
I'll be here, but need to take a quick break to do bedtime.
Terra Vance
01:02:59
with my 4 year old
Angela
01:07:06
Thank you Lisa, that is a great list for what makes a great communication partner, I am just taking a course to be a S2C practitioner. Eventually I will be training CRPs...do you mind if I share this with my other co-horts in the course?
Lisa Vallado
01:07:45
Of course!
Angela
01:08:01
Thank you!
Maria Ott
01:09:04
Here here!
Maria Ott
01:09:17
Right on, Lisa Mihalich Quinn!
Beth Tolley
01:09:50
Thank you! Stop presuming we know the function of the behavior! A major downside of PBIS.
Mary Wetherell
01:10:47
Angela…can you share where you are taking a course to be a S2C practitioner?
Angela
01:11:10
I-ASC
Mary Wetherell
01:11:18
Thank you!
Angela
01:13:32
I have learned so much! I am an Education Assistant in the public school system in BC. I am hoping to make a difference and open peoples eyes and change their perspectives about non-speaking autistics. Damon has been an inspiration for me. I love all that I am learning from him and other non-speakers.
Damon
01:16:20
as a nonspeaker, professionals are often certain that they know my intentions. Yet, these same professionals would not think that about themselves. They would not believe that people could know their reason for behaving a certain way. The paradigm exists to understand only autistic people, it seems. Particularly nonspeaking autistics. Ironically, nonspeaking people should be considered the most enigmatic--not the least.
Melissa Egan
01:17:44
Well said, Damon!
Neelam M.
01:18:10
Thank you, Lisa!
Damon
01:18:16
Lisa M. Quinn, thank you!
Neelam M.
01:21:13
Wishing Early Happy Birthday to Jack!
j
01:24:13
Amy, Thank you so much for sharing the experience of the real boys and girl. So beautiful.
j
01:24:34
Thank you to all the presenters?
Angela
01:25:11
I am an EA in BC Canada and almost all of our kids have 1;1 support but unfortunately the lack of presuming competencies common
Anca
01:25:26
https://www.halo-soma.org/
Mary Wetherell
01:25:42
Amy-how long did your son use a letter board before transitioning to keyboard?
Maria Ott
01:26:08
https://xminds.org/Nonspeaking-Autistics
Terra Vance
01:26:08
I'm here
Anca
01:26:37
https://www.reacheveryvoice.org/
Vina Patel
01:27:16
Thank you for listing these resources!
Terra Vance
01:27:21
https://i-asc.org
Sue Keisler
01:29:33
For Lisa — Can every child learn to type?
Jessica Harris
01:30:20
In thinking about programming is it best to use the alphabet in the natural alphabet order or to learn from the beginning with the QWERTY because that is what they will see everywhere
Melissa Egan
01:30:33
Amy, you talked about your journey in presuming competence in Jack. Was Jack's statement of being really smart at the SOMA camp your a-ha moment as a parent? Has it been difficult to convince others, not only Jack's school team, but others of his competence? How have family members, for example, evolved in Jack's presumption of competence?
Maria Ott
01:31:40
Great documentary. You can find it on Vimeo.
Lisa Mihalich Quinn
01:31:51
Wretches and Jabberers
Maria Ott
01:31:55
will send link in a second...
Maria Ott
01:32:39
https://vimeo.com/ondemand/wretchesjabberers
Melissa Egan
01:33:20
Thank you, Amy.
Damon
01:33:42
I type independently, and sometimes the competence issue still comes up. I have the paperwork, and still... It is going to be a long battle
Terra Vance
01:33:47
This is me trying to steal more of your writers right now
Terra Vance
01:34:50
and to Damon and any other autistic people here, if you would ever like to publish on NeuroClastic, you can email me at terra.vance@neuroclastic.com
Beth Tolley
01:35:06
This has been fabulous! Will this be available to refer others to watch/listen to?
Damon
01:35:12
Thanks Terra Vance!
Terra Vance
01:35:19
Yes, Beth, they are recording
Sue Keisler
01:35:42
We will send everyone a link to the recording and post the recording on our website tonight or tomorrow.
Jessica Harris
01:35:46
Thank you.
Vina Patel
01:35:47
I have the same question as Bethy. Thanks for asking.
Kyle Scott
01:35:52
My son went through many assistive devices but did not connect. He was graced with that one teacher who believed me when I said he can read though he couldn't speak. A whiteboard and dollar store letter magnets later, he was spelling out words and responding to her questions.
Melissa Egan
01:35:59
It will be posted on our web site, www.xminds.org.
Stefany
01:36:14
Thank you so much to everyone, this has been so helpful 💜
Angela
01:36:17
This has been great! I am looking forward to checking out all the websites!
giavannagiorgio
01:36:34
As a future educator, this has all been very informative for me and I am feeling very inspired. Thank you all very much for presenting.
Lisa Vallado
01:36:35
My sister did a movie about us called Sisterly. I am bias, but I think it is pretty good! https://vimeo.com/ondemand/sisterly
Melissa Egan
01:36:43
Kudos, Maria, for everything!
Neelam M.
01:36:49
Wish you best of luck, Maria!
Damon
01:36:50
Sisterly was great, Lisa
Terra Vance
01:36:55
Thank you for that link, Lisa!
wendylesko
01:37:10
Absolutely superb to every single one of you!
A1 Susan Quack
01:37:13
Thank you; so appreciative of tonight's message.
Vina Patel
01:37:25
Great discussions and sharing. Glad to be part of this group tonight.
irenemansfield
01:37:29
thank you all
Beth Tolley
01:37:37
Thanks for persisting past the initial challenges! You guys rock!
Damon
01:37:39
great discussion
Pamela Talley
01:38:01
This was wonderful...thank you!!
Lisa Vallado
01:38:05
Thank you everyone!
Mary Wetherell
01:38:09
Thank you!
Anita Scheetz
01:38:22
Thank you for this webinar! Thank you speakers, this was wonderful.