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Mama Knows Breast - Shared screen with speaker view
Martha (she/her/hers) ICWNA
30:37
WELCOME everyone :)
Martha (she/her/hers) ICWNA
34:42
Please make sure you share and record your questions in the Q&A
Heather ICWNA (she, her, hers)
34:59
Welcome everyone!!
Heather ICWNA (she, her, hers)
40:38
https://4mmm.org/
Heather ICWNA (she, her, hers)
40:58
Please check out 4M Network! ^^
Tendayi Westerhof
42:06
hello everyone I am Tendayi Westerhof from the Pan African Positive Women's Coalition-Zimbabwe thank you
Heather ICWNA (she, her, hers)
42:51
Welcome, Tendayi! Thank you for being here today with us!
Heather ICWNA (she, her, hers)
43:19
Hi Demetra! Thanks for being here!
Heather ICWNA (she, her, hers)
44:10
That's amazing Fungai! So incredibly needed in the pregnancy/motherhood journey.
Martha (she/her/hers) ICWNA
44:37
Truly inspiring…
Martha Tholanah
46:48
Inspiring Fungai! Thank you!
Kneeshe Parkinson
46:54
Inspiring Testimony
Bela Modi
49:11
Fungai, first of all, your accent is beautiful! I wish I didn't sound so...bland! Thank you so much for being a revolutionary in this incredibly important fight!!
Mel Rattue
54:59
Will these slides be available Shema?
Martha (she/her/hers) ICWNA
55:02
Please remember to record your questions in the Q&A so you don’t forget them … we will do our best to make sure questions are answered!
Olivia Ford
58:54
Safer triangle seems like a really useful tool!
Heather ICWNA (she, her, hers)
01:02:24
Thank you so much, Shema!
Shema Tariq
01:02:34
I will make my slides available
Shema Tariq
01:02:50
I will pop the link to safer triangle here in the chat
Bela Modi
01:03:03
Dr. Tariq, thank you so much for your contribution!! We are very thankful for your efforts and participation.
Tendayi Westerhof
01:03:18
thank you yes we need the slides
Shema Tariq
01:03:32
https://www.bhiva.org/file/5bfd3080d2027/BF-Leaflet-1.pdf
Tanvi Rai
01:07:06
Hello everybody, Shema, Angelina and a few of us are conducting a study called Nourish-UK, based at University of Oxford. We are really interested in hearing from women and birthing parents who are either pregnant or have a baby under a year old about their decisions regarding infant feeding. Please do have a look at our study website and get in touch if you'd like to take part: www.phc.ox.ac.uk/nourishUK
Heather ICWNA (she, her, hers)
01:08:01
Again link to Nourish studies:
Heather ICWNA (she, her, hers)
01:08:38
https://www.phc.ox.ac.uk/research/health-experiences/Nourish_UK
Heather ICWNA (she, her, hers)
01:09:59
AGREED
Tanvi Rai
01:10:05
thanks Heather!
Heather ICWNA (she, her, hers)
01:10:16
Thank you, Tanvi!
Heather ICWNA (she, her, hers)
01:10:30
Thank you so much Dr. Faulhaber!!!
Kneeshe Parkinson
01:11:00
This has been so awesome today !! A wealth of information awesomeness
Bela Modi
01:11:35
Dr. Faulhaber, thank you so much for your contribution and forward thinking! We appreciate all of your support and efforts!
Bela Modi
01:16:04
Dr. Faulhaber, please feel free to elaborate here in the comments if you'd like, or you can address it out loud if you'd prefer. :)
Tanvi Rai
01:16:11
Poor Martha - all so traumatic
Samantha Dawson
01:16:40
shocking treatment !!
Olivia Ford
01:16:58
Martha, thank you so much for sharing. Awful and ridiculous for you to have these experiences rooted in ignorance
Bela Modi
01:17:23
Martha, thank you so much for sharing this heartbreaking account, and all of your work to make sure this never happens to other birthing parents living with HIV!
Heather ICWNA (she, her, hers)
01:18:01
I am so sorry that was your experience Martha. No one should EVER have to experience that.
Antolette D Moore
01:18:33
Gm to u all my name is Antolette sorry to be late I got caught up with the time, thank you for having me in this program nuff love
Shema Tariq
01:19:45
Martha thank you for such generous sharing. I am so sorry you were treated like this by someone who should have been caring for you. This would have been against all guidance.
Aan Rianto
01:19:52
so far in Indonesia women living with HiV with Undetectable VL and on treatment can give birth per-vaginum, and breast feed with procedure:Profilaksis upon delivery, EID (PCR) on 6 weeks....if not detected then stop the profilaksis.final conclusion is on antibody test on 18th monthsbreast feed can only allowed for 6 months without mixed feeding.so far no case of transmission (as I've heard from community) happened
Rebecca Mbewe
01:20:07
Sadly this kind of treatment STILL goes on despite the huge advances in treatment. Indeed NO woman should ever have to go through that
Tendayi Westerhof
01:20:45
I also delivered by cesarean section, enticed into tubligation and was told not to breastfeed. my daughter was born negative and is now 19 years.But that time in 2003 was a very traumatic experience for me.I was told forced sterilisation was best for me because I was HIV + and that I should not have children.However that situation has changed with the evolution of EMTC ,HIV+positive mothers are now encouraged to breastfeed their babies unless there are serious medical condition e.g if the viral load is high and CD4 low.
Shema Tariq
01:21:11
All the questions in the chat are so important so if possible I think we should address live rather than by typing
Mel Rattue
01:22:00
congrats Cici !!
Bela Modi
01:22:03
Angelina, thank you so much for sharing your story and being able to share your account so charmingly and with humor. I'm sure it was very challenging. Thank you so much for everything you do!
Nicole Elinoff
01:22:05
Congratulations!!
Rebecca Mbewe
01:22:08
My sentiments too
Heather ICWNA (she, her, hers)
01:22:11
Absolutely, Shema!
Heather ICWNA (she, her, hers)
01:25:01
https://www.thewellproject.org/a-girl-like-me/aglm-blogs/liquid-gold
Heather ICWNA (she, her, hers)
01:25:13
A link to Cici's blog^^
Heather ICWNA (she, her, hers)
01:25:35
https://www.thewellproject.org/
Heather ICWNA (she, her, hers)
01:26:01
Also a link to our lovely partners website. Happy to partner with The Well Project! <33 ^^^
Bela Modi
01:26:52
Cici, you bring up such an incredible point as it relates to the financial strains put on new parents. That is one intersection of marginalization that we can easily eliminate as we move forward!Thank you so much for sharing your story, and congratulations on your pregnancy and we wish you all the best in your breastfeeding journey!!
Shema Tariq
01:27:42
Thank you CiCi and Heather for openly sharing what it means to breastfeed as a parent living with HIV - it goes such a long way to challenge stigma
Martha (she/her/hers) ICWNA
01:27:45
Well done Cici …always inspiring to hear your journey
Kneeshe Parkinson
01:28:35
Cici your story spoke life for me
Olivia Ford
01:29:00
Such vital points and stories and evidence you both share - thank you so much always and forever, Ci Ci and Heather! <3
Tanvi Rai
01:29:06
is prophylaxis given to babies in the UK?
Shema Tariq
01:30:16
We don't give prophylaxis to babies beyond 2-4 weeks post-partum. Not much evidence to support routine infant prophylaxis for breastfeeding - maternal ART should be enough
Shema Tariq
01:30:34
^^^BHIVA guidance
Aan Rianto
01:31:30
maternal art is enough to protect the babies?
Alice Welbourn
01:31:58
@Martha your story of your experience is so deeply harrowing and such a violation of your rights. Thank you so much for sharing it with us here. Sadly globally there is a real lack of recognition of our SRHR as women throughout our lives and especially during our child birthing experiences https://www.whiteribbonalliance.org/respectful-maternity-care-charter/
Shema Tariq
01:32:03
Yes - no evidence of additional benefit with infant prophylaxis
Davina Conner
01:32:32
Appreciate you doing that Heather because you can be that voice hear for all women who want to make that choice.
Aan Rianto
01:33:34
thank you @sheemacan you share the BHIVA literacy please? i would love to share to our community since babies are given prophylaxis upon delivery
Martha (she/her/hers) ICWNA
01:33:57
Thank you Alice … and I wish I had a mentor mother at that time:) no woman should have to go through that. I can’t wait for us to have Mentor Mothers available to women across the USA!
Shema Tariq
01:34:03
If a woman chooses not to breastfeed for whatever reason there is medication you can take to stop milk production so it's not painful
Martha (she/her/hers) ICWNA
01:34:46
The mothers antibodies are being transferred to babies
Bela Modi
01:35:01
Heather, thank you so so much for being willing to openly share as a mother living with HIV and post-partum mental health needs, and who is actively breastfeeding! We are so honored to be in the trenches with you to make giving our babies the best a standard and not an exception!Thank you for pointing out an often ignored truth, which is that breastmilk isn't just food...IT IS MEDICINE!
Gillian Letting
01:36:08
The key thing for me is supporting the mothers with their choices and avoiding guilt-led kind of support from care givers. I have two children and I breastfed one and formula fed the other and they are both healthy and happy children
Alice Welbourn
01:36:28
Wonderful sharings all of you THANK YOU @Martha @Angelina @Cici @Heather
LeaSuwanna Griffith
01:37:27
The pill to suppress my milk didn't work twice which was frustrating for me.
Ciarra Covin
01:37:45
literally nobody helped me with that. I was on my own
Alice Welbourn
01:37:46
@Gillian absolutely! Ensuring our SRHR throughout the perinatal journey, specifically our rights to informed choice and SUPPORT for whatever we decide every step along the way…
Ane Martínez Hoffart
01:37:52
I heard the medication increases the risk of post partum depression? It wasn’t recommended to me because of that.
Rebecca Mbewe
01:38:05
Thank you Gillian - great point. Women living with HIV already live with enough guilt as it is
LeaSuwanna Griffith
01:39:06
I am currently pregnant and this time will be asking and getting the support to breastfeed my baby 🥰
Olivia Ford
01:39:36
^^^CONGRATULATIONS! Right on! <3
Heather ICWNA (she, her, hers)
01:39:52
That's amazing LeaSuwanna, congratulations!!! Please do join our support group, bit/ly/TheMilkyMoovement
Heather ICWNA (she, her, hers)
01:40:08
oops... bit.ly/TheMilkyMoovement
Samantha Dawson
01:40:13
Congratulations Leasuwanna
ICW SouthernAfrica
01:40:50
CONGRATULATIONS @Leasuwanna
Bela Modi
01:41:13
LeaSuwanna, congratulations on your pregnancy!! May I ask where you are located. If you'e in the US, we'd be happy to help you make mooves!! :D
LeaSuwanna Griffith
01:42:13
I am currently in the UK with the lovely 4M ladies and will make moves here to be heard 😎
Ciarra Covin
01:42:41
I know that's right LeaSuwanna! Congrats!
Kneeshe Parkinson
01:42:57
An open conversation is helpful for all women
LeaSuwanna Griffith
01:43:24
Thank you. 😊
Mel Rattue
01:45:17
community representation is so important
Shema Tariq
01:45:22
LeaSuwanna - huge congratulations :-)
Gillian Letting
01:46:25
Thanks @Alice. Absolutely! Either choice is not an easy journey (talking from my experience) hence SUPPORT! is paramount.
Alice Welbourn
01:46:35
Wonderful news @Lea congratulations!!
Martha (she/her/hers) ICWNA
01:46:47
A doctor’s support is GOLD… Dr. Jason is Super Hero and Dr. Shema is a Super Shero :)
Shema Tariq
01:47:03
😊
Bela Modi
01:48:25
Heather, that is such an important point! You were able to make a choice because you were presented with ALL the information and data to afford you the ability to make an INFORMED decision. That should be the standard! That is the call-to-action!
Heather ICWNA (she, her, hers)
01:50:15
Will link to the consensus statement!
Heather ICWNA (she, her, hers)
01:50:21
Standby
Olivia Ford
01:50:36
Expert consensus statement Ci Ci referenced: https://www.thewellproject.org/hiv-information/expert-consensus-statement-breastfeeding-and-hiv-united-states-and-canada
Olivia Ford
01:50:45
@Heather I gotchu! ;-) <3
Heather ICWNA (she, her, hers)
01:50:52
https://icwnorthamerica.org/expertconsensus/
Heather ICWNA (she, her, hers)
01:51:00
Thanks boo! <333
Gillian Letting
01:51:22
@Bex absolutely. The guilt that mounts on a mother as a positive mother is a lot as it is. It impacts hugely on the mental health of hiv positive mothers
Davina Conner
01:51:25
Thank you for this webinar
Olivia Ford
01:51:25
Co-authored by a range of experts by a group co-convened by ICW-NA and The Well Project!
Aan Rianto
01:51:52
Prophylaxis is still needed for newborn babieshttps://clinicalinfo.hiv.gov/en/guidelines/perinatal/antiretroviral-management-newborns-perinatal-hiv-exposure-or-hiv-infection🧐🧐
Martha (she/her/hers) ICWNA
01:52:24
Cici’s point is VERY important about the difference in experience between white women and women of color/immigrants.
ICW SouthernAfrica
01:53:14
well done Cici for choosing to take care of yourself and your son
Rebecca Mbewe
01:53:14
Most definitely Martha
Heather ICWNA (she, her, hers)
01:53:14
linktr.ee/TheMilkyMoovement
Davina Conner
01:53:43
Yes Martha, experiences are always so much different between white women and women of color/immigrants
Tendayi Westerhof
01:54:02
with the evolution of emct HIV positive lactacting mothers make informed choices to exclusively breastfeed for 6 months
Longret
01:55:14
Such profound and inspiring stories and ponints . Welldone and THANK YOU to all of you incredible women and our equally incredible and supportive clinicians
Martha (she/her/hers) ICWNA
01:55:39
We need to demand for the research and data to be done in the West
Tendayi Westerhof
01:56:07
agreed
Longret
01:56:27
Asolutlely@Martha
Davina Conner
01:57:58
Martha Absolutely
Davina Conner
01:58:37
Women need that support
Longret
01:59:06
Mentor mothrs as part of the clinic multidisciplinary team is crucial to this support
Heather ICWNA (she, her, hers)
01:59:15
YES SHEMA
Kneeshe Parkinson
01:59:17
Absolutely
Olivia Ford
02:01:04
Excellent question! We will be discussing breast/chestfeeding in the context of HIV criminalization/state intervention on August 24 - come hear Ci Ci and Heather speak up and out yet again! TWP. ICW-NA, Center for HIV Law and Policy, Sero Project
Olivia Ford
02:01:13
Getting link!
Olivia Ford
02:01:52
Register here for webinar discussion on breast/chestfeeding and HIV criminalization here: https://bit.ly/BABYUU
Mel Rattue
02:03:31
I was threatened that it would be a child protection issue in the UK by my midwife, but I didn't breast feed this baby so don't know how far it could have gone. also know of another case where this was an issue
Davina Conner
02:04:03
Thank so much to everyone for such great information
Lena Soje
02:04:40
Thank you all for sharing, very informative :)
ICW SouthernAfrica
02:06:00
Thank you everyone; for sharing your amazing experiences quite informative
Olivia Ford
02:06:53
Let's keep this conversation going and active in many corners! To be added to the growing HIV and Infant Feeding listserv, email oford@thewellproject.org (that's me, Olivia!) - worldwide members welcome <3
Heather ICWNA (she, her, hers)
02:06:54
or menstruation?
Kia Benbow
02:08:11
Wow. Thank you so much. I really needed all of this information!
Kia Benbow
02:08:21
How can I get more involved?
Kia Benbow
02:08:36
I joined the support chat, but would like more info
Davina Conner
02:08:39
Would love to connect with any ladies here to talk more about U=U Dee Conner preventionaccess.org
Kneeshe Parkinson
02:08:40
Thank you so much, so much support from physicians world wide. Powerful testimonials much love Queens- from ICWNA-co-chair Kneeshe
Tanvi Rai
02:09:11
https://twitter.com/nourishukstudy
Heather ICWNA (she, her, hers)
02:09:32
linktr.ee/TheMilkyMoovement
Shema Tariq
02:09:33
https://www.gov.uk/government/publications/integrated-screening-outcomes-surveillance-service-isoss-annual-report/integrated-screening-outcomes-surveillance-service-isoss-annual-report-2021#hiv-and-breastfeeding
Shema Tariq
02:09:53
This is a link to a recent report from the UK programme which collects data on HIV in pregnancy
Alice Welbourn
02:09:59
Just want to share some other docs: a) https://www.who.int/reproductivehealth/publications/gender_rights/srhr-women-hiv/en/ ; and also b) two fab @4M documents: https://4mmm.org/wp-content/uploads/2020/12/4M_Breastfeeding_PaperAugust2020.pdf and https://4mmm.org/wp-content/uploads/2020/12/4M_July2020_Advocacy_Brief_3page_summary_final.pdf for more information about ENSURING OUR SRHR *globally*. Thank you SO MUCH to the whole team @ICWNAmerica @WellProject @4M for hosting this awesome webinar #whatwomenwant #oursrhr and to @DrShema and @DrJason for all your great contributions too! AND all the fab questions and sharings!!! THIS is where change happens!!
Rebecca Mbewe
02:10:12
4MNet link to article about SRHR and the right to make informed choice being a global issue. https://4mmm.org/wp-content/uploads/2020/12/4M_July2020_Advocacy_Brief_3page_summary_final.pdf
Shema Tariq
02:10:20
They are now looking at HIV and breastfeeding and report new data (as of last month): https://www.gov.uk/government/publications/integrated-screening-outcomes-surveillance-service-isoss-annual-report/integrated-screening-outcomes-surveillance-service-isoss-annual-report-2021#hiv-and-breastfeeding
Bela Modi
02:11:01
Thank you to the IWCNA Board for all of your support! I might be biased, but you ladies are the best!! <3
Melanie Reese, (She, Her, We)
02:11:14
BIPOC have VERY DIFFERENT experiences with both medical and legal issues ~Queen Melanie,ICWNA Board member
Davina Conner
02:11:16
Thank you Martha
Longret
02:11:31
4M Net report on Breast/Infant feeding :https://4mmm.org/wp-content/uploads/2020/12/4M_Breastfeeding_PaperAugust2020.pdf
Heather ICWNA (she, her, hers)
02:11:46
Information regarding The Millky Moovement+:
Heather ICWNA (she, her, hers)
02:11:49
https://icwnorthamerica.org/about-the-milky-moovement/
Heather ICWNA (she, her, hers)
02:11:58
Please, please check us out.
Olivia Ford
02:12:03
Clearinghouse of info about HIV and breast/chestfeeding (including a resource list with many of the resources shared here!): https://www.thewellproject.org/hiv-information/breastfeeding-chestfeeding-and-hiv-supporting-informed-choices
Tanvi Rai
02:12:40
Will the links in the chat be available later?
Olivia Ford
02:12:43
Milky Moovement is so powerful and just what we've needed! I'm gonna share the link again 'cause can't share enough https://www.thewellproject.org/hiv-information/breastfeeding-chestfeeding-and-hiv-supporting-informed-choices
Olivia Ford
02:13:04
Oy shared wrong one :-P https://icwnorthamerica.org/about-the-milky-moovement/
Heather ICWNA (she, her, hers)
02:13:19
lol love you Olivia, thank you my love!
Longret
02:13:28
and the 4M website :) https://4mmm.org/
Rebecca Mbewe
02:13:46
We are planning to make them available Tanvi. If not forthcoming immediately - please reach out and I am sure they can be provided
Heather ICWNA (she, her, hers)
02:13:51
https://icwnorthamerica.org/formal-call-to-action/
Antolette D Moore
02:13:56
if I have had this information nine years back I could have Brest feed my two children in other for us to get the mother & child bond. once again thank you for having me on board.
Heather ICWNA (she, her, hers)
02:14:05
^^^ PLEASE SIGN ON TO CALL TO ACTION
Tanvi Rai
02:14:07
Thanks Rebecca
Davina Conner
02:14:25
Yes a choice and so sorry you had to go through that Martha
Kneeshe Parkinson
02:14:57
Please sign on to the call of Action
Heather ICWNA (she, her, hers)
02:15:06
https://icwnorthamerica.org/formal-call-to-action/
Davina Conner
02:15:08
Very informative information here thank you soooo much everyone!!
Rebecca Mbewe
02:15:39
Thank you all for your attendance
Mel Rattue
02:15:48
a collaboration of 4m and the well project and ICWNA amazing !!! makes me soo happy all great forces for the rights and empowerment of women living with HIV xxx
Longret
02:16:05
Thank you everyone :)
Rebecca Mbewe
02:16:19
Thank you everyone!
Melanie Reese, (She, Her, We)
02:16:33
Thank you all👏🙏🏼❤️‼️
Olivia Ford
02:16:39
Awesome, powerful conversation! Huge gratitude to ICW-NA, 4M, and all you brilliant panelists! This movement is on its way <3 <3 <3
FREDRICK RADOME
02:16:41
What amazing conversation. Thank you!
Ane Martínez Hoffart
02:16:44
Thank you for a great seminar! Greetings from Sweden
Samantha Dawson
02:16:52
thank you, was brilliant and powerful
Christina Antoniadi
02:16:55
Thank you. Its very good.
Tanvi Rai
02:17:02
Thanks so much everyone - fab meeting
Gillian Letting
02:17:03
Thank you all! Very important and needed conversation
Martha Tholanah
02:17:08
I really enjoyed this. Thank you!
Rebecca Mbewe
02:17:11
Thank you Ane
Adela Senkubuge
02:17:13
thank you our panelists