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#TrikaftaToday Community Briefing - Shared screen with speaker view
Kim Steele
02:50
Hi everyone! Welcome! Will give about five minutes for people to log on then we will begin.
Janice Daniels
11:32
That is so amazing!!
Steph Stavros
11:39
I love hearing these stories!!
Steph Stavros
12:11
Great team work!
iPad (154)
12:42
So incredible how everyone came together!
Janice Daniels
16:34
You have moved mountains!! So amazing!!
Chris
16:41
Awesome video!!!
Kelly Grover
16:48
Goodness. LOOK WHAT YOU HAVE DONE!!!!!
Louise Taylor
16:48
Taht made me cry
Anne Marie Drake
16:59
That was lovely.
Lorna McEwan
17:06
okay, now we have ugly but very happy tears running!
Steph Stavros
17:08
I’m not crying…. … … I am.
iPhone sharon
18:49
Well said Kim, these drugs open up a whole new life for people with Cf and their families.
Kelly Grover
20:10
I need to head to another meeting. Thanks for all you do - I am so lucky to work here and on your behalf. Cheers and happy holiday, Kelly
Janice Daniels
22:28
So very special Lorna!! ❤️
iPhone sharon
22:43
I think having our health minister and ADM in Alberta be so invested in Cf because of the many points of contact from across the province.
Kim Steele
24:37
Sorry folks having issues with my second monitor. Here are the questions: What were some of your most memorable CF advocacy moments from this journey?- What is keeping you motivated or inspired to continue advocating?- What was your one takeaway or learning from CF advocacy that will stay with you going forward? 
Kim Steele
24:48
What were some of your most memorable CF advocacy moments from this journey?
Kim Steele
25:02
What is keeping you motivated or inspired to continue advocating?
Kim Steele
25:19
What was your one takeaway or learning from CF advocacy that will stay with you going forward? 
Janna Patterson
30:47
Thank you Stephanie!
John Bennett
31:04
Thanks so much as always! Have a great holiday season everyone….a great time to celebrate even more and recharge the batteries for what’s ahead in 2022!
Louise Taylor
31:35
You are exactly right Steph!! Thank you for all your hard work on this on behalf of everyone with CF of all ages
Lorna McEwan
31:39
Thank you Stephanie
Lorna McEwan
34:41
Remember everyone to Journal your journey when you start on Trikafta as this will help others in the future. You won't remember everything and journaling will help.
Steph Stavros
35:15
That is beautiful. I ugly cried.
Lorna McEwan
36:53
Also remember to send followup letters to your MLA's with your progress as this will help to get Trikafta and other gene modifying drugs to the younger CF Warriors.
Danielle Weil ON
39:18
agreed Louise! This group is like no other
Steph Stavros
39:25
We all love you Louise!!!
Kim Steele
40:17
Louise we are so fortunate to have you with us! I have learned so much from you. Thank you.
Steph Stavros
43:18
Chris, you should be so proud. You never stopped fighting!
Darren Finlayson
43:24
I have a thought/idea. If we can find a way to compress the video, that would a great resource to share with MPs, media, and the like. It certainly speaks volumes (we are certainly all emotional from it) and makes it tangible for those that have helping us thus far as we continue this important cause. Puts faces to the names as they say :)
iPad (154)
44:05
Great point, Chris!
Lorna McEwan
47:02
Chris & Twyla, I am so grateful for having you in the Saskatchewan CF Community. Your drive for the cause is amazing! Thank you 🙂
Danielle Weil ON
47:03
I agree Darren!
Lorna McEwan
47:38
Totally agree Darren.
Chris
48:37
Thank you for pushing forward and reaching out to both the NDP and SaskParty caucuses back in the springtime, Lorna. I was feeling very discouraged earlier this year and your drive helped to reignite me.
Janice Daniels
48:50
100% agree with you Aisha ❤️
Chris
54:06
Awesome!
iPad (154)
01:06:11
My daughter was also almost without it!
iPad (154)
01:06:19
She is in BC.
Laura Cross
01:07:30
Hi KimWith your letter to the big insurance company’s are you recommending that they allow patients to bypass their programs such a step therapy where ppl have to try the lower cost alternative first before trying the higher cost which would be trikafta? That could be something that they may push back on and will cause ppl a delay in ppl receiving a denial for public insurance. I work in insurance so let me know if there is anything I can do to help with this. I have to drop off but let me know but email me if you need help.Thank you so much everyone in all you do.
Janice Daniels
01:08:41
Thank you so much everyone, happy holidays!!