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Frayme Knowledge Series: IYS from Coast-to-Coast - Shared screen with speaker view
Heather (she/her) Tech Support
59:42
Welcome to the first day of the Frayme Knowledge Series: IYS from Coast-to-Coast!
Lisa Stromquist
01:00:32
Hi everyone, I'm Lisa Stromquist from Children's Healthcare Canada. Excited for the conversations.
Tamir Virani
01:00:34
We’ll be getting started shortly. In the meantime, please feel free to introduce yourself and how you fit into the youth mental health and substance use sector. If you’re joining us as a group, let us know how many people are tuning in with you and where you’re tuning in from! Please post your comment to ‘everyone’ in the To: field so that everyone can see your messages.
Heather (she/her) Tech Support
01:00:58
Hi @Lisa! Welcome!
Stacie Smith
01:01:27
Hi everyone, I’m Stacie Smith from the Mental Health Student Support Network and the Young Canadians Roundtable on Health. Looking forward to today :)
Heather (she/her) Tech Support
01:01:42
Hi @Stacie! Welcome!
Kevin Dornian
01:01:46
Hello, my name is Kevin Dornian and I am a Program Manger for McMan Medicine Hat. I oversee a number of youth homelessness programs and adult addiction/recovery programs in the community
Heather (she/her) Tech Support
01:02:00
Welcome, @Quentin and @Kevin!
Anita Simon
01:02:05
Hi everyone. Anita Simon here from Imagine Citizens Network in Alberta and member of Children's Healthcare Canada. Great to see you here Lisa!
Kinsey Beck
01:02:12
Hi everyone, I am Kinsey Beck from the Canadian Institute for Health Information. I work on youth and family engagement and implementing sociodemographic data standards into mental health and susbtance use indicator development.
Kelsey DesRoche
01:02:17
Hello everyone. I am Kelsey DesRoche from Wood's Homes in Lethbridge. I am the team lead for the Youth Support Navigation program which is part of the Integrated Coordinated Access system in Lethbridge!
Mara Hayward
01:02:28
Hi Everyone, my name is Mara and I work as the Coordinator for Fort McMurray, AB Integrated Youth Network
Joshua Hatherley
01:02:30
Hello, I'm Josh Hatherley from mindyourmind and ConnexOntario. I'm the research and evaluation lead here, and I primarily conduct statistics on how well we're able to engage youth in mental health resources in their region.
Lisa Stromquist
01:02:43
HI Anita!
Christian Mac�
01:03:06
Christian Macé. Ministry of Health and Social services in Quebec
Dana Sharp-McLean
01:03:11
I'm Dana Sharp-McLean, working with AHS A&MH in Central Zone in AB. I work in Addiction as Clinical Lead for the North part of our zone. I currently chair our IYS Hub steering committee for our communities in Brazeau County/Drayton Valley. Very exciting opportunity. Thank you!
Lauren Griffin (she/her)
01:03:21
Hello everyone, my name is Lauren Griffin and I am the Grants and Loans Officer at Body Brave! We work to reduce barriers for individuals accessing eating disorder treatment.
Katherine Hay
01:03:34
Hello everyone, Katherine Hay from Kickstand in Alberta connecting from Treaty 6 territory and excited to be here today.
Tamir Virani
01:03:41
To visualize the traditional territory you currently reside on, we invite you to visit https://native-land.ca/.
Kate Gatto
01:04:14
Hello everyone, I'm joining from the RBC Foundation, I support the youth mental wellbeing area of the Future Launch Strategy. I'm based in Toronto, I'm a settler on Dish with One Spoon territory.
Kelsey DesRoche
01:05:08
I am a settler on the Blackfoot territory
Joanna Henderson (she/they)
01:05:09
I am coming to you today from the lands of the Mississaugas of the Credit First Nation where I live with gratitude as a settler.
Marie-Lou Meawasige
01:05:10
My name is Marie-Lou Meawasige and I reside on unceeded Algonquin Territory.
Mary Hanna
01:05:38
Hi Everyone, nice to e-meet you. I'm Mary Hanna, with Youth Wellness Hubs Ontario. Good to be here. I'm joining from Toronto, the traditional territory of the Mississaugas of the New Credit.
Tamir Virani
01:05:47
FYI - Live transcripts are available during the event. You can access this feature by selecting Live transcript in Zoom.
Heather (she/her) Tech Support
01:06:29
FYI - simultaneous interpretation from English to French is available during the event. You can access this feature by selecting Interpretation below.
Kelly Veillette
01:06:33
Hello everyone, Kelly Veillette from Foundry. I honour and acknowledge that I live and work on the traditional territory of the Lekwungen people, and I also honour and acknowledge all the First Nations, Metis and Inuit people who have lived, traveled and gathered on these lands for centuries.
Nicole Weatherly
01:07:49
Hello everyone. I am joining from Tkaronto, Ontario, Turtle Island, and acknowledge that this land is the traditional territory of many nations including the Mississaugas of the Credit, the Anishnabeg, the Chippewa, the Haudenosaunee, and the Wendat peoples. Tkaronto is now home to many diverse First Nations, Inuit, and Métis peoples. I also acknowledge that Tkaronto is covered by Treaty 13 with the Mississaugas of the Credit. Thank you for the opportunity to be here.
Dana Sharp-McLean
01:07:49
I live and work on the traditional territory of Treaty 6 signatories - Blackfoot, Cree, Anishnabe, Nakota Sioux, Tsuu'tina, Dene, Inuit and the Metis people of Region 4.
Tamir Virani
01:08:42
Thank you all for introducing yourself, what a great group we have here today. As we begin, we want to remind you that we have developed an IYS repository, which you can access here: https://fraymeiys.pory.app. In effort to reduce fragmentation of knowledge, we invite you to share any relevant resources that you or your organization have developed to this repository.
Justine Narine
01:08:43
Hello everyone, my mane is Justine Narine with SRDC. With respect, I acknowledge that my place of work is located on original lands of Anishinaabeg, Cree, Oji-Cree, Dakota, and Dene peoples, and on the homeland of the Métis Nation.
Deb Chiodo
01:11:18
Hi Everyone, Deb Chiodo, and I work and live on the land of the traditional territory of the Attawandaron, Anishinaabeg, Haudenosaunee, and Lunaapeewak peoples in London Ontario
Pamela Liversidge
01:13:34
Hello everyone, I am Pam Liversidge from BC Children's Hospital. I acknowledge that I live and work on the traditional territory of the Tsleil-Waututh, Musqueam and Squamish people, and I also acknowledge all the First Nations, Metis and Inuit people who have lived, traveled, and contributed across all of these lands.
Kate Gatto
01:20:51
Well said, Dr. Henderson. Thank you!
Dana Sharp-McLean
01:21:16
👏🏻
Linda Warford
01:21:29
Thanks Joanna, lots to think about.
Micaela Harley
01:21:35
👏🎊
Joanna Henderson (she/they)
01:22:06
Thank you!
Kaitlyn Axelrod
01:28:19
Thank you for bringing eating disorders into this conversation, Shaleen! So many providers are scared to broach this topic, yet doing so is necessary. Eating disorders also take a huge toll on the healthcare system.
Micaela Harley
01:33:52
"family integration option" Wow.. that's a great idea, Teegan!! 👏
Micaela Harley
01:34:13
Great job, Teegan!!!
Stacie Smith
01:34:14
👏
Lauren Brucker
01:34:19
Thank you for sharing Teegan.
Kelsey DesRoche
01:34:26
👏
Dana Sharp-McLean
01:34:30
👏🏻
Kelsey DesRoche
01:34:30
thank you Teegan
Linda Warford
01:34:36
Excellent job Teegan. Thanks so much.
Shaleen Jones
01:35:00
👏 So well said Teegan! Thank you! And this idea of being able to share your story with other without having to tell it over and over? ✅
Sydney Graham
01:35:01
Great points Teegan. Families are essential in the care of their loved one.
Dana Sharp-McLean
01:35:23
Yes!
Shaleen Jones
01:36:00
Peer Support is magic! And Peer Support Programs need investments - training, supervision, support, evaluation- all are needed to do this work well.
Stacie Smith
01:36:34
Yes, Shaleen! Investments are crucial for a successful program.
Micaela Harley
01:36:46
👏
Teegan McGavin
01:37:02
Thanks so much everyone! I appreciate it! I was very nervous so I am so happy many of you connected with my words ☺️
Stacie Smith
01:37:58
As someone with lived experience with depression and anxiety, I can relate with much of your talk. Very inspiring, Teegan!
Lauren Griffin (she/her)
01:38:09
Lived experience is so powerful in mental health services!
Tamir Virani
01:38:47
FIY - we currently sharing some Q&A’s and highlights from this knowledge series across our socials - find them by searching #IYS2021 on Twitter. Weigh in with your thoughts 🙂💬
Sydney Graham
01:39:20
Lived experience of the families or essential caregiver should be integrated into co-delivery as the expert of the client.
Alana Salsberg
01:40:10
Yes, Sydney. Very important point.
Natalie Markoff
01:40:53
Thank you so much Gina!
Shaleen Jones
01:41:31
Peer Supporters can be agent of change. At the same time, adding peer support to a system without structural and attitudinal changes places the burden on that peer supporter. And that’s not fair.
Sydney Graham
01:43:28
Peer Support for the families is also essential, to learn self care, management skills and strategies to move their children towards an effective outcome. We provide a majority of the care and are a huge relief to the healthcare system
Shaleen Jones
01:44:27
100% yes!!!
Shaleen Jones
01:44:46
Who is missing! Yes!
Anita Simon
01:45:08
Peer support is so important! Thanks Gina. When Calgary Silver Linings was founded, community ranked it as their #1 need for eating disorder support at its open-house/launch. Hence it became the first short-term priority for the Foundation and has continued to grow almost exponentially since its beginning, showing its need and value.
Shaleen Jones
01:45:57
Eating Disorders Nova Scoria is so honoured to be supporting this work, training the Peer Supporters at Silver Linings.
Micaela Harley
01:50:04
👏
Stacie Smith
01:50:10
👏
Shaleen Jones
01:50:10
👏
Kelsey DesRoche
01:50:14
👏
Dana Sharp-McLean
01:50:21
👏🏻Thank you!
Teegan McGavin
01:50:34
Amazing job Mom!!🥰
Linda Warford
01:50:34
Really great insights and information.
Tegan Baker (she/her)
01:52:00
Thank you Shannon!! So insightful and well said.
Julia Solimine (she/her)
01:54:24
If you have any questions for our presenters, please feel free to type them in the chat box. We may not be able to get to questions during the sessions, but we will be following up with full Q&A documents post-event. Make sure to follow us on Twitter and Linkedin to stay up-to-date on post-event documents.
Joshua Hatherley
01:56:22
I have a question for Joanna. You mentioned that we may need to broaden and/or adjust our understanding of evidence. I was wondering what your definition of evidence is, and how it needs to adjust.
Justine Narine
01:56:44
Great job Kendra! We heard you well- Justine (Winnipeg)
Katelyn Greer
01:56:53
Joys of zoom! you sounded great Kendra!
Anita Simon
02:02:00
YES please!!! Couldn't agree more Joanna!!!Evidence should be led by community, defined by community...to better meet needs as we know often clinical systems do not measure what matters to the community or individual. Outcomes should come from youth and family. And shared openly, to promote accountability in health systems and to learn, share and guide IYS
Shaleen Jones
02:03:45
100% this! And imagine if our formal mental health care system, and outcomes were co-designed and evaluated!
Dana Sharp-McLean
02:05:23
And what if "the system" stopped doing what they do because that is how they have always done things! I would prefer (as part of the system) to do things with clients that are actually effective.
Alana Salsberg
02:05:46
Yes Dana ^!
Natalie Markoff
02:06:48
The Ontario Centre of Excellence for Child and Youth Mental Health has developed Quality Standards for youth and family engagement that can guide this work.
Dana Sharp-McLean
02:07:16
I have printed those out to guide our hub.
Micaela Harley
02:07:18
Yes, Natalie!!! Those standards are wonderful and we use them here at Frayme.
Katelyn Greer
02:07:34
I wonder about how people with lived experience will be given the opportunity to gain the skills to work in research. It's so important and I see the difference when people with lived experience are involved in every step of the research to guide it! even highly technical things.Gaining the skills and confidence to work in research has been a real struggle for me as a person with lived experience 😮
Linda Warford
02:07:45
Here we are talking more and more about functional needs rather than diagnoses.
Stacie Smith
02:08:58
I can relate, Katelyn. I have found it hard to understand the concepts and skills to work in research, and it is such an interest to me.
Elizabeth Guevara
02:09:01
Echo Katelyn's comment - how do we build capacity to meaningfully engage youth and family/carers in research in an equitable way!
Alana Salsberg
02:10:56
@katelyn, agreed. I am taking the Family engagement in research program at McMaster and it's really heartening to see researchers as enthusiastic as the family members involved in the program.
Micaela Harley
02:11:29
@alana, are you able to share the link to that course? :)
Stacie Smith
02:11:45
Yes, I’d love that link too :)
Alana Salsberg
02:12:05
https://kidsbrainhealth.ca/index.php/training/training-careers-opp/family-engagement-in-research-course/
Joshua Hatherley
02:12:09
Lived experience is incredibly important, especially in generating important research questions and getting the "ball rolling". But if we're talking about research, I think it's important that we don't take anecdotes as evidence. Research studies still need to be designed, evaluated, and reviewed so that we can authenticate the things we find. If we're going to make research more engaging for a community, then we have to make resources available to teach people how to do proper scientific research. What's more, we need the funding to be able to support this.
Alana Salsberg
02:12:11
Highly recommend!
Katelyn Greer
02:12:24
I am so touched and feel more normal hearing other people thinking the same thing! Thanks everyone who replied to my message
Marie-Lou Meawasige
02:15:20
Researchers that work with (especially particular) communities are needing to consider the ongoing conflict (tug and pull) between the values of the academic world and those of the community itself. It is important to consider the ways of knowing that exist in particular communities when developing research methods.
Alana Salsberg
02:15:33
LOVE this idea, Gina.
Stacie Smith
02:15:39
Love the idea of Peer Support Researchers!
Jemma Llewellyn
02:15:40
I'm an arts-based researcher and the IYS model opens up a whole host of opportunities for collaborations to happen. Joanna's comment earlier on about evidence is broadly defined is really interesting. I'm wondering any of the panelists have experience of using arts-based approaches in research as evidence collection. If so what impact has this had?
Chloe Guinaudie
02:16:05
Completely agree with Shannon. Public health systems often have very strict rules about hiring - it takes a lot of negotiation (with HR and unions) sometimes to shift the system and allow youth and family be involved in the hiring process! Just a thought!
Dana Sharp-McLean
02:16:06
AHS Welcoming and Engaging Strategy for A&MH is where we started. Engagement starts before the person enters the doors.
Lauren Griffin (she/her)
02:17:23
This is such a great idea to learn more about what is truly needed and effective
Alana Salsberg
02:17:26
@Jemma, have a look at the gallery we created for our Great Big Stories grant stream. Many of them are amazing art-based services https://emaze.me/frayme#1
Julia Solimine (she/her)
02:17:40
Frayme is supporting four grant recipients of the Learning Through Living Applied Research Grant Program with funding to help them engage youth and caregivers with lived expertise in research practice through partnership. Learn more about the LTL grant and the recipients here: https://frayme.ca/learning-through-living-applied-research-grant-program?mc_cid=fb891049b1&mc_eid=630ca14030
Travis Sztainert
02:18:37
There are new methodologies that have been developed that try to answer these type of questions including pragmatic clinical trials, and robust, rapid-cycle, non-randomized methods for embedded research. However, they are not the norm, and a lot of researchers are unaware of these methodologies
Jemma Llewellyn
02:18:39
Thanks so much @Alana!
Teegan McGavin
02:19:41
Wow that is amazing @Travis! I had no idea and I am grateful to hear those are out there!
Joshua Hatherley
02:20:16
Yeah, I've love to hear more about methods like those and how they differ and improve on traditional ones.
Katelyn Greer
02:20:37
@Travis always amazed by your knowledge in research! haha
Jemma Llewellyn
02:20:40
Thank you!
Alana Salsberg
02:21:44
Stick around everyone. We're going to put everyone to work thinking about how to act on some of the amazing insights from the panel.
Micaela Harley
02:22:30
🎊
Tegan Baker (she/her)
02:22:52
Thank you so much everyone! Looking forward to a rich discussion after the break! :)
Tamir Virani
02:22:54
Thank you for your participation in the first half of the day. We will now be taking a short break. Please join us back here in 10 minutes for breakout sessions!
Marie-Lou Meawasige
02:23:10
Thank you to the panelists for sharing their stories and expertise :)
Tamir Virani
02:24:02
Agreed Marie-Lou!
Susan Reich
02:24:10
Thank you!
Teegan McGavin
02:24:20
Thank you everyone for listening, this has been amazing!! ☺️
Tamir Virani
03:36:25
If you are interested in sharing from your breakout room, please select the "Raise hand" option at the bottom of your zoom toolbar ✋
Chloe Guinaudie
03:38:05
Great summary - nothing to add :)
Teegan McGavin
03:38:42
I can’t remember which group I am 😅
Heather (she/her) Tech Support
03:38:44
Yes - to speak, please be sure to raise your hand
Kelsey DesRoche
03:39:06
I think we were group 1. We spoke a lot about including caregivers in the programming and how vital that is to the work
Chloe Guinaudie
03:42:46
Something I forgot to mention in our breakout room is language- can be a barrier to accessing meaningful care for youth!
Elizabeth Guevara
03:43:23
Great summary Travis, thanks!
Travis Sztainert
03:45:31
From what I understand, there are definitely opportunities for researchers and evaluators to work with IYS services provides in Quebec (through the Aire Ouverte initiative)
Chloe Guinaudie
03:49:13
Yes - Aire ouverte is actively developing their evaluation protocol (at the ministry level) - not sure who is involved in that but would be great for pan-Canadian IYS researchers to get participate to learn from their experience!
Kelsey DesRoche
03:49:41
Along with caregivers, we recognized the importance of including schools in collaboration as they are the ones seeing many youth every day.
Sharon Clark
03:52:08
great job Teegan.
Alana Salsberg
03:52:30
We'll be sharing out the discussion points from the breakout sessions and miro boards to everyone post-event.
Dana Sharp-McLean
03:52:30
Excellent sharing today. Have to dash for another meeting. Look forward to tomorrow's session!
Heather (she/her) Tech Support
03:53:05
Thanks for joining, @Dana!
Tamir Virani
03:58:10
FYI - Want to keep the conversation going? Registration for days 2 and 3 is still open. Find information on discussion topics and registration details here: https://frayme.ca/news/iys-coast-coast-frayme-knowledge-series
Anita Simon
03:58:47
Marketing/promoting of IYS services and value was also very much identified as a gap needing attention as it will/is likely impeding access/navigation so involvement of user/client in web/marketing design again
Julia Solimine
03:59:07
Thank you for attending day 1 of the IYS Knowledge Series. Before you log off, please take the time to fill out a short survey to let us know how we did. All survey respondents will be automatically entered into a draw to win a prize from Frayme. Access the survey here: https://www.surveymonkey.com/r/IYS_Forum_DayOne
Michele Sparling
03:59:08
I am sorry I can not join in tomorrow, look forward to joining you again Thursday.
Kelsey DesRoche
03:59:09
Thank you for such a wonderful and inspiring day!!!
Christian Mac�
03:59:16
Thanks a lot for bringing us together!
Susan Reich
03:59:22
Thank you!
Toni Carlton
03:59:23
Musi cho for the learning and sharing today :)
Marie-Lou Meawasige
03:59:28
Thank you everyone