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Advancing Research Through the Krabbe Community United Research and Engagement Study (KrabbeCURES) Webinar - Shared screen with speaker view
Stacy Pike-Langenfeld
28:44
Thank you all for being here today! Please be sure to ask questions.
Anne Rugari
34:23
Let the Krabbe community know about the importance of partipating in KrabbeCURES!
Anne Rugari
37:03
krabbecures.iamrare.org
Anne Rugari
55:32
The study will be ongoing and information will be housed at NORD. The data is kept indefinitely.
Anne Rugari
01:03:46
Thank you for attending! Happy Holidays!