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Be Heard By the FDA: Learn More About the Patient Focused Drug Development Meeting for Krabbe Disease - Shared screen with speaker view
Debbie Drell
35:41
To register:https://web.cvent.com/event/127659da-90dc-4825-a7f3-4d13971c4b72/summary
Debbie Drell
36:16
To submit your interest as a speaker: https://rarediseases.org/event/krabbe-disease-externally-led-patient-focused-drug-development-meeting/
Debbie Drell
41:14
Sample EL-PFDD meeting with NORD and PK Deficiency: https://rarediseases.org/pkdpfdd-watch/
Debbie Drell
41:37
Recent Article on PFDD meetings: https://www.pharmavoice.com/article/2019-04-drug-development/
Debbie Drell
41:49
Voice of the Patients Report: https://rarediseases.org/wp-content/uploads/2020/01/NRD-2029-Voice-of-the-Patient-Report-PKD_FNL-1.pdf
Debbie Drell
42:32
Clarification:Deadline for speakers: Friday, August 7, 2020
Debbie Drell
54:39
To register:https://web.cvent.com/event/127659da-90dc-4825-a7f3-4d13971c4b72/summary