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Options for Decision-making When My Child on the Spectrum Turns 18 - Shared screen with speaker view
Laura Gordon, xMinds Board President
30:36
Hi Everyone, please mute your microphones and turn off your video so we can focus on the speakers. Thank you!
Darius Sivin
32:13
Will the PPT slide show be available to us?
LAM
48:11
How long can someone receive special education and services once they turn 18?
Laura Gordon, xMinds Board President
48:53
HI LAM, in Maryland, special education is typically up to age 21.
Laura Gordon, xMinds Board President
50:10
Good question, Darius. We'll post the presentation on our site in the next few days and send a follow up email with how to access it.
Darius Sivin
53:34
Thanks
iPad (7)
53:49
exactly how difficult is it to reverse guardianship if all parties are in agreement
Laura Gordon, xMinds Board President
55:48
Hello All, I'm keeping track of all the questions here in the chat, so that I can ask them during the Q&A. Please feel free to enter any questions in the chat now. Thanks!
Kerry Wilson
56:24
Can we receive the slideshow afterward so we don't have to take notes?
Sue Keisler
56:39
yes
Kerry Wilson
56:46
Thanks!
Laura Gordon, xMinds Board President
57:01
The slideshow will be available on our site in a few days. We'll send a follow up email with instructions about how to access it.
Darius Sivin
59:29
Is supported decision-making a formal legal instrument or a series of informal practices
Ellen Mahan
01:00:04
Morgan, you talk about guardianship somehow precludes supported decision-making? When a parent has guardianship, the parent and adult child can engage in all aspects of supported decision-making. Why do you think that?
Emily DeCoster
01:00:37
Can we get some examples of where self determination applies and what rights/how involved can parents be? Are there tools or scenarios/hypothetical situations that would help parents think through the options (guardianship vs supported decision making)?
carole.excell@wri.org
01:04:27
It would be helpful in this webinar to provide some real practical examples about health procedures , vaccines , sex, housing , funding .. what creates conflicts and how does having a lower option of supported decision-making mean for the different options
Darius Sivin
01:07:38
Make EPA Great Again!
Therese
01:07:58
Where do I find the packet?
Laura Gordon, xMinds Board President
01:08:32
We will send a follow up email within the next day or so with the resources.
Katie Smeltz
01:13:43
Adam, that was very impressive!
Hadja Diallo
01:14:19
Thank you so much for sharing Adam i am proud of you keep of the good work stay bless
David Hoffman
01:14:28
Adam, we are very proud of you.
stephanie mchugh
01:14:33
thank you Adam! That was very helpful information,
carolleoneil
01:14:37
WELL DONE ADAM
Mary Kate Gutierrez
01:15:35
Thank you, Adam! My son, who is 20 years old, did the CLE program and is taking classes at MC. He will be moving out next summer. I will ask him to look at Main Street.
Adam Hoffman
01:16:55
Just today, I heard in the news that Pfizer's vaccine (that one) is 95% effective against covid. Two days ago, I heard in the news that Moderna's vaccine (the other one) is 94.5% effective.
Jon's iPad
01:18:21
That was great, Adam! My son is 17, on the autism spectrum and will likely be attending MontCo in the fall. Your story gives me hope :)
Linda and Luz
01:18:26
m How does a financial POA affect a representative payee for SSI?
Patrick Quigley
01:19:55
Question for Morgan. What happens in supported decision-making when there is a dispute between the adult child and the parent? Unless there is a guardianship, the parents have no role, if the adult child does not want to have the support, right?
carolleoneil
01:24:49
I am amazed how many supports Adam receives, how did you find all of these?
Ray Horn
01:25:40
MD disability benefits are under Medicaid and cover job coaching and social supports?
Lynda Guernsey
01:26:08
how do you apply for md disability benefits?
carolleoneil
01:28:21
Thank you for all your parental advice
Kim Pinckney-Lewis
01:28:22
Thanks for your information sharing!
Margaret Dillman
01:29:13
Thank you so much to the Hoffmans for sharing!!
Bernice Natelson
01:31:08
Adam and Howard, what a wonderful, thoughtful, and thorough presentation!
odonna simpson
01:31:51
Does Adam use a circle of support where all his support people meet regularly on goals and issues of importance to Adam? It seems like he meets with everyone individually but we have been encouraged to use a circle of support to help our daughter set goals? What are your thoughts?
Kim Pinckney-Lewis
01:32:30
Like schooling, sounds like it’s best to start with the least restrictive
Sharon F
01:34:12
How does guardianship impact the right to vote?
Judy & Zoe
01:34:19
Thank you, very informative; appreciated hearing from the Hoffmans.
Christine
01:34:33
How do you formalize supported decision making?
William Valentin
01:37:34
Can siblings become a trustee?
Scot Marken
01:38:58
I am the former CEO of a nonprofit supporting individuals with IDD. There were numerous instances I saw where an individual was their own guardian but the doctor would still not accept the individual’s wishes without a parent agreeing. Not right, but it definitely happens.
Melissa Egan
01:39:06
Question for Howard and Adam: What role, if any, does Adam's sister have in helping Adam make decisions in his life? Are there benefits to having friends and mentors be supported decision making partners instead of primarily family members?
Katie Smeltz
01:39:42
Such great information. What if the two parents do not agree and they are divorced?
Katie Smeltz
01:41:16
Also, for Adam, how do you make your social calendar with your support person. How does that work? Does he look at your calendar with you and email invites?
Katie Smeltz
01:43:31
How can we make IEP meetings appropriate and not self esteem draining?
Kim Pinckney-Lewis
01:44:17
I think as parents, we have to feel more empowered to call out those toxic IEP meetings especially when our kiddos are present.
Lynda Guernsey
01:46:08
what happens if your 18 year old student no longer wants their IEP?
Lynda Guernsey
01:47:03
how do you help encourage them rather than risking them dropping out?
odonna simpson
01:50:25
Thank you for sharing Howard and Adam. Great job!
Scot Marken
01:50:40
How difficult is it to get the Rep. Payee changed?
carole.excell@wri.org
01:55:05
would guardianship prevent your child from getting a drivers license?
Nausher
01:56:45
When is guardianship the better option?
Jean Winegardner
02:01:14
Thank you all so much!! This presentation from all three of you was so informative!
Morgan Whitlatch
02:01:33
mwhitlatch@dcqualitytrust.org
Kim Pinckney-Lewis
02:01:36
Thank you all so much! Adam, you’re awesome!
Linda and Luz
02:01:42
Thank you. Fantastic presentation!
Morgan Whitlatch
02:01:46
Adam and Howard, that was great!
carolleoneil
02:01:49
Thank you everyone
Therese
02:01:58
Thank you for the helpful information.
Hadja Diallo
02:02:12
Thank you everyone
Kerry Wilson
02:02:17
THanks!
William Valentin
02:02:22
Thank you so much!