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The Forgotten Victims of the Covid Pandemic: A Conversation and Screening of Long Haul: The Movie - Shared screen with speaker view
Jorge Silva-Puras
28:57
Thank you for organizing!
Ryan Davila
30:21
Good Evening Everyone, thank you for joining us tonight: captioning is also available via the following link.https://www.streamtext.net/player?event=CUNY
Christopher Leydon (he, hiim)
33:09
More about the CUNY SPS Disability and Access Coalition: https://sps.cuny.edu/student-services/student-life/clubs-and-committees/disability-and-access-coalition
Jamie Lerner-Brecher
41:17
Link to the 40-minute version of Long Haul: The Movie. https://vimeo.com/605110503
Jamie Lerner-Brecher
42:21
More information about Long Haul: The Movie. https://www.longhaul.movie
Jamie Lerner-Brecher
42:36
More about the CUNY SPS Disability and Access Coalition: https://sps.cuny.edu/student-services/student-life/clubs-and-committees/disability-and-access-coalition
Jamie Lerner-Brecher
43:42
More information about Pulmonary Wellness’s work on long COVID: https://pulmonarywellness.org/covid-bootcamp/
Jorge Silva-Puras
44:09
Noah, wondering if you have done other films or if this is the first?
Patricia F Anderson
45:52
I’m not sure if this is the same Noah Greenspan (in IMDB) https://www.imdb.com/name/nm7169940/
Joyanne Raya
47:07
Thank you all for sharing your stories
Darien Gold
59:40
So beautiful Noah…
Jamie Lerner-Brecher
01:01:21
If anyone has questions for our panelists, you are welcome to ask them in the chat. We will get to the audience Q&A portion later in the meeting.
Jonathan Hanon
01:09:56
It's not even close to gone... there's COVID in my home right now, my father just got COVID.
Jonathan Hanon
01:10:27
I'm quarantining from him, to try to prevent myself from getting it, and fingers crossed I don't get it and he doesn't become a long hauler.
Kathy Flaherty
01:20:43
This brings back so many memories of March 2020 (OG longhauler here)
Jonathan Hanon
01:21:04
Wow... as severe as ALS?
Patricia F Anderson
01:22:06
Me, too, Kathy. March 13, 2020.
Patricia F Anderson
01:23:15
@Jonathan sometimes yes. Other times, maybe not? If you're lucky. It's “a waxing waning presentation." It all comes and goes
Patricia F Anderson
01:25:44
I remember it was over a year before I could go to a clinic and the intake person or nurse would have heard of long COVID. Each time, “What brings you in today?" “Have you heard of long COVID or COVID long haulers?” “No, what's that?” Oy.
Jonathan Hanon
01:27:07
This virus is unprecedented.
Jonathan Hanon
01:27:34
It's incredible that it's been changing everything for two years and we're still not fully aware of everything.
Graziella Reis-Trani
01:28:15
@Kathy, I have been feeling the same way hearing people’s stories. March 17, 2020 for me.
Heather
01:29:54
April 1, 2020 for me
Patricia F Anderson
01:30:27
And they wouldn't come into your ER room for hours and hours or check on you, because they'd have to gown up.
Patricia F Anderson
01:31:09
My son had to help me walk to the bathroom, because I couldn't get there without falling over.
Rachel Carmona
01:31:31
the covid tents were traumatizing for me ......
Graziella Reis-Trani
01:31:36
I remember being told by my doctors at that time that unless I was dying and couldn’t catch my breath, don’t go to the ER as that might be where you die. It was very scary to hear that from your doctors
Pamela
01:31:47
Or we were told to go home because lab work all came back as “normal.”
Jonathan Hanon
01:32:20
@Patricia I didn't have COVID, but I can relate to that so much... when I had a traumatic accident, I'd have doctors checking in maybe once a day because they thought I had meningitis, and it's just... horrible that they don't do their due diligence.
Jonathan Hanon
01:32:59
I was on a ventilator, and had multiple surgeries, but they'd barely check in.
Patricia F Anderson
01:33:09
Well, it's so isolating. And scary. When you call for help and the hospital staff won't come in the room or answer questions
Jonathan Hanon
01:33:19
Exactly.
Jonathan Hanon
01:33:23
It's so horrible.
Pamela
01:33:25
Agreed, Graziella, going to hospital meant you were going to die there. That’s what the news said, that’s what we were told. Very scary.
Pamela
01:35:59
Ann, thank you for sharing your journey and your daughter’s. So helpless to be a parent going through that. I am sorry you and your daughter are experiencing that.
Christopher Leydon (he, hiim)
01:36:26
^^^
Tammy Wilshire
01:36:32
March 2020 Covid infection. Testing was not available in my rural area. I was "textbook" moderate Covid.so the doctors never believed me when I said that I probably had covid and something was wrong.that was very traumatic and I'm still gunshy seeing doctors. still don't have proper care 2 years later.So many of our rural doctors don't even know what long covid is....😞thank you to all of you for sharing.
Pamela
01:38:39
To the panelists: I imagine you have been told that you look well so people don’t understand. It’s terrible to have to “prove” illness to others.
Toniann Cusumano
01:41:11
Very much so
Toniann Cusumano
01:41:31
We do not necessarily look sick
Toniann Cusumano
01:41:38
But if I looked as sick as i feel/ you would rush me to the hospital
Heather
01:43:31
people think that I am lying about still having symptoms after two years. It's very frustrating to feel awful and not be believed.
Pamela
01:45:47
To the panelists: In addition to the support group, what has helped you get through the Long Haul? And related to what @Ann just said, what have you learned from having Long Covid?
Rachel Carmona
01:48:04
ive been told im lying, exaggerating , faking it all because I want pity..... and since im sent home theres nothing wrong with me and its all in my head. im always asked , if you are soooo sick then why aren't you in the hospitalized. I finally was and it wasn't long enough to prove serious illness to them!
Lizzie Fry
01:49:05
I have not had COVID but need to understand the problems that may occur. Strangely, after my 2nd vaccination of Pfizer, I was extremely ill for over a week, and the symptoms were the same as the panel are describing, but of shorter duration. My heart goes out to sufferers.
Jamie Lerner-Brecher
01:55:01
Link to the 40-minute version of Long Haul: The Movie. https://vimeo.com/605110503
Jamie Lerner-Brecher
01:55:07
More information about Long Haul: The Movie. https://www.longhaul.movie
Jamie Lerner-Brecher
01:55:13
More information about Pulmonary Wellness’s work on long COVID: https://pulmonarywellness.org/covid-bootcamp/
Jamie Lerner-Brecher
01:55:17
More about the CUNY SPS Disability and Access Coalition: https://sps.cuny.edu/student-services/student-life/clubs-and-committees/disability-and-access-coalition
Christopher Leydon (he, hiim)
01:57:02
Great insights Noah and panelists. Thank you for sharing these candid insights and reflections on your personal experiences.
Johanna A
01:57:10
thank you all for sharing your stories. i am going through the exact same thing from when I got covid December 2021. sent home from ER 9 times and told I had anxiety, and its all in my head. my family didn't believe me until this week when mt. sinai finally confirmed dysautonomia and pots. so happy to have found Noah and this group. I feel so validated. thank you all and sending healing to everyone.
Sylvia de Montigny
01:59:47
Thanks to everyone for sharing your stories and being here tonight. You’re inspirations to us all!❤️
Kaci Conley
02:00:20
Thank you all so much for sharing your stories!!
Toniann Cusumano
02:00:35
😉
Ann Wallace
02:01:14
People like Noah and Marion helped me stay focused and keep going. Their commitment is motivating & inspiring
Amanda Ramkishun
02:01:21
Thank you for being so open, honest, and willing to share your story with us! Wishing you all peace and healing. :)
Ana Alvarez
02:02:23
This is a form of therapy, thank you all for sharing
Pamela
02:03:08
Thank you Jamie for hosting such a wonderful panel filled with inspiring and thoughtful information and rawness. Thank you Ann, Sue and Toniann for sharing your stories. And Noah for bringing Long Haulers together. Let’s beat this thing.
Graziella Reis-Trani
02:03:23
Thank you everyone for this event!
Ann Wallace
02:03:37
Thank you, Jamie, for organizing this event.
Jonathan Hanon
02:04:24
Thank you so much for this informative panel!
Jamie Lerner-Brecher
02:04:58
Link to the 40-minute version of Long Haul: The Movie. https://vimeo.com/605110503More information about Long Haul: The Movie. https://www.longhaul.movieMore about the CUNY SPS Disability and Access Coalition: https://sps.cuny.edu/student-services/student-life/clubs-and-committees/disability-and-access-coalitionMore information about Pulmonary Wellness’s work on long COVID: https://pulmonarywellness.org/covid-bootcamp/