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Hello everyone. Greetings from Timmins Ontario Canada. I hope everyone's evening or afternoon is as great as mine is starting
Great to watch it together!
That was wonderful. Thank you to all who participated!
Please share: https://youtu.be/nAYWAfivP1s
Gary Frohlich Frohlich
Congrats! to the GCA and all the people thriving with Gaucher and living their very best life.
If anyone would like to donate: https://www.gauchercommunity.org/get-involved/donate/
So we can continue supports programs for our community.
an absolutely amazing video. I am sharing right away on my personal facebook as well as my book page
We appreciate you, Adam!! So love having your support to spread awareness!
this is terrific! tx We now have a quick easy wzy to show what Gauchers is.
yes, I’d like to contribute my story. Not sure how to do this. Ginger
Amazing!!! I'm still in tears from the heart-breaking parts, but there's so much hope from all the rest! Seeing is believing. I hope Gaucher awareness spreads esp. among medical professionals, from seeing so many patients of all genders, colors and ages and from so many countries.
I'm Type 1, and my infusions are every 3 wks. Not as few sticks as every 4, but better than every 2.
i got myself an apple watch so my wrist would remind me when to take my Zaveasca. 3 times a day was harder then when I was on the Cerdelga trial
Diana Paulina Aragón
Aviva, you are totally right. we are not alone. together we have a very powerful voice.
Here’s the Link again: Link: https://youtu.be/nAYWAfivP1s
And to share if anyone or family and friends want to donate for Gaucher Awareness Month: https://www.gauchercommunity.org/get-involved/donate/
Short video: https://youtu.be/XJo9vnH1rvg
Thank you all so much for your fine work, and especially the enthusiasm!!