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Prader-Willi Syndrome (PWS) through the eyes of a physician, an allied health professional, and a caregiver
Join Maithé Tauber (France), Theresa Strong (USA), and Georgina Loughnan (Australia) in an educational session about Prader-Willi Syndrome.

During this webinar, the speakers will adress PWS diagnosis and features in neonates, children, and adolescents; the importance of ongoing care; and the key aspects of daily life and support for people living with PWS and their families.

***Target audience***
Parents, family, educators, caregiving professionals, medical professionals, neighbours, friends, government bodies, and anyone with a connection to a person living with PWS.

A sound knowledge and understanding of this condition is essential for the appropriate support and care of persons living with PWS and will contribute to the nurturing of their personal identity and full potential.
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Speakers

Maithé Tauber
Professor of Pediatrics | Coordinator of the reference centre for PWS in France @Children Hospital CHU Toulouse | University Toulouse III
Maithé Tauber is a Professor of pediatrics endocrinology trained in Toulouse (France) and in Stanford university. Her clinical and research interest was mainly in growth disorders, obesity, Prader-Willi syndrome and other rare causes of obesity. She is the Chair of the coordination of the French networks for prevention and care of obesity and Coordinator of the reference centre for Prader-Willi Syndrome.
Theresa Strong
Director of Research Programs @Foundation for Prader-Willi Research, USA
Theresa Strong, PhD, is a co-founder and Director of Research Programs at the Foundation for Prader-Willi Research (FPWR, www.fpwr.org), a nonprofit that advances research in Prader-Willi syndrome (PWS). Prior to joining FPWR full time, she had an academic career in genetics/cancer gene therapy and remains an Adjunct Professor at the University of Alabama at Birmingham. She has four children, including a young adult son with PWS.
Georgina Loughnan
Physiotherapist @Royal Prince Alfred Hospital, Sydney Australia PWS, Australia
Georgina has worked for Metabolism & Obesity Services, Royal Prince Alfred Hospital, Sydney, Australia since 1983. Her original discipline is physiotherapy. She specialises in lifestyle prescription for weight loss in people with physical and intellectual disabilities and mental illness. In 1991 she established the first public hospital-based clinic in Australia for adults with Prader-Willi syndrome(PWS), and soon after, expanded the clinic to see adolescents from the age of 11 years. She works closely with people who have PWS and their families, support workers, educators and employers, promoting healthy nutrition and exercise, and appropriate environments for people with PWS, so they may enjoy a full life and greater longevity. She is board member of PWS Australia Ltd and a past board member of IPWSO, and remains an IPWSO Advisor.
Cheri Deal (Chair)
Professor Emeritus | Pediatric Endocrinologist and Clinical Investigator @Université de Montréal | Research Institute CHU Sainte-Justine
Prof. Deal, PhD, MD, FRCPC recently retired from her position as the Chief of Endocrinology and Diabetes and tenured Full Professor at the Sainte-Justine Mother-Child University of Montreal Hospital, where she has worked since 1992. Dr. Deal continues on for her teaching, research and out-patient clinical activities. She has trained over 50 research fellows and endocrinology residents, and has over 150 publications, including co-editorship of the book Maternal-Fetal and Neonatal Endocrinology, in 2019. She has won teaching and career achievement awards from her national society. Dr Deal has completed mandates as the President of the Canadian Society of Endocrinology and Metabolism (CSEM), as Council Member for the Growth Hormone Research Society, as the Training Director for the Royal College program in Pediatric Endocrinology and Diabetes for the University of Montreal, and as site leader for the pan-Canadian Child Health Clinical Scientist Training Program (CCHCSP) for many years.