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Self - Care for Rare Disease parents #Rare #bonnellfoundation
Let’s gather and unwind together. The pandemic has increased the stress families in the Rare Disease community are experiencing.
Please join The Bonnell Foundation: Living with cystic fibrosis as we present: Manage stress and Promote self-care.
We all need some tips on how to do this!
We’re honored to have Kristen Reese, Project Director of the Michigan Family to Family Health Information Center lead the discussion. Reese is a great friend of the rare disease community.

Apr 21, 2021 07:00 PM in Eastern Time (US and Canada)

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This webinar will be recorded.

Speakers

Kristen Reese
Project Director @Michigan Family to Family Health Information Center
As Parent and Project Outreach and Engagement Coordinator at the Center for Health Equity Practice at the Michigan Public Health Institute, Kristen Reese supports and actively engages patients, parents and family members as invested stakeholders throughout all aspects of MPHI’s work, ensuring that patient/family member expertise and experience are represented in project activities, goals and objectives. Kristen contributes to various family-focused projects, including Midwest Genetics Network, and serves as Project Director for the Michigan Family to Family Health Information Center. Kristen is the parent of a young adult with a genetic developmental disability and has over 20 years of experience advocating on behalf of her daughter. She educates and encourages individuals with disabilities and their families to use their voice to shape policy and practice within the healthcare system.