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Palliative Care and Neurology – Models of Collaboration
Presented by the EAPC Reference Group on Neurology and Palliative Care. David Oliver will chair the session which will include the following presentations:
Development of an in-patients neuropalliative care unit: Alexander Kowski & Anna-Christin Willert (Germany)
An outpatient approach to diagnosis and planning: Annerieke van Groenestijn (Netherlands)
Neuro-palliative care out patient clinics: Renáta Zeleníková and Radka Buzgova (Czechia)
Collaboration across Europe – the EAN/EAPC survey: David Oliver (UK)
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Speakers

David Oliver
Professor David Oliver is a retired Consultant Physician in Palliative Medicine and is an Honorary Professor at the Tizard Centre at the University of Kent, at Canterbury. He has lectured and published widely on neurological palliative care, particularly on the care of people with motor neurone disease/ amyotrophic lateral sclerosis. He was the Chair for the UK National Institute for Health and Care Excellence Guidelines on MND. He was first author of the EAN paper “A consensus review on the development of palliative care for patients with chronic and progressive neurological disease”. He has been involved in many projects across Europe is Chair of the EAPC Reference Group on Neurology and Palliative Care and a member of the Management Group of the Palliative Care Specialty Group of the European Academy of Neurology. He is a Fellow of the European Academy of Neurology.
Radka Bužgová
Radka Bužgová, PhD. (assisstant professor at Department of Nursing and Midwifery, Faculty of Medicine, University of Ostrava) is a lecturer of nursing and medical ethics, palliative care, social medicine and research. She has been working at the University of Ostrava, Czech Republic since 2006. She also works as a bereavement counsellor in a mobile hospice. Her background is ethics, social work in palliative care. She is author and/or co-author of more than 100 scientific papers in peer-reviewed journals. She was the principal investigator of the Ministry of Health grants related to palliative care in neurology focusing on patients and their caregivers. As part of the project she cooperated with the neurological clinic of the University Hospital Ostrava. She is a member of the Czech Society of Palliative Medicine and on the committee of the Section for Ethics in Palliative Medicine at the Society.
Renata Zeleníková
Renata Zeleníková, PhD. RN. (assisstant professor at Department of Nursing and Midwifery, Faculty of Medicine, University of Ostrava) is a lecturer of nursing, transcultural nursing, surgical nursing care, communication and evidence-based practice. She has been working at the University of Ostrava, Czech Republic since 2009. Her background is nursing, specialization in surgical nursing care. She participated at 10 national and international projects. She has experience as a nurse at Intensive care unit. She teaches several courses in both the bachelor‘s and master‘s nursing programmes. She is an author and tutor of several e-learning courses for nursing study programmes at the Faculty of Medicine. She is author and/or co-author of more than 80 scientific papers in peer-reviewed journals. She participated in Czech Ministry of Health grants related to palliative care in neurology focusing on patients and their caregivers.
Annerieke van Groenestijn
Dr. Annerieke C. van Groenestijn combined a medical training for rehabilitation physician with her work in research projects focused on improving the wellbeing of people with Amyotrophic Lateral Sclerosis (MND). In 2017 she obtained her PhD degree on the topic “Aerobic exercise and cognitive behavioural therapy in ALS: optimizing quality of life” at the University of Utrecht. She currently works as a rehabilitation physician at the Amsterdam University Medical Center with a special interest in neuromuscular disorders, specifically motor neuron disease (MND). As a rehabilitation physician, her mission is to support patients in their independent functioning and anticipate the problems that may arise in the course of their illness. In doing so, she and her team try to match the wishes of patients and their partners, taking into account their different ethnic, cultural and religious backgrounds.