There is widespread acknowledgement that the data inputs supporting value and health technology assessment are insufficient, both in their lack of representative diversity and their failure to capture real-world factors that matter to communities living with chronic health conditions.
IVI will host a three-part webinar series to frame discussions about improving equity in research: representing patient community perspectives in the methods that support value assessment and developing policy solutions to support such initiatives. This series will build toward IVI’s second annual Methods Summit in late 2021, where both gaps and emerging approaches in improving patient-centered data inputs to research and value assessment will be examined. The three webinars will focus on identifying areas of consensus and current initiatives, as well as essential actions to propel lasting, durable change.
Session One Learning Objectives:
* Define equity in the context of value assessment.
* Consider the implications of gaps in patient-centered research inputs for value assessment and how they affect equity in decision-making and care delivery.
* Identify emerging research and strategies for collecting and incorporating diverse, lived-experience perspectives to inform value assessment.
* Identify needed action and research to accelerate and maintain focus on equity.
LaTasha H. Lee, PhD, MPH
National Minority Quality Forum
Michelle McMurry-Heath, MD, PhD
Biotechnology Innovation Organization
Upal Basu Roy, PhD, MPH