A researcher’s journey to accessing patient data Tuesday, 25 May
10:00 - 11:30am
In the webinar, we will explore the steps that researchers take, to access a patient's healthcare data - from application to data access through to a completed research project.
We will conduct a compare and contrast of how this journey differs across the four UK nations and hear from researchers about the challenges and frustrations that they face.
Our patient panellist will look at where the patient voice currently sits in this data access landscape and the benefit this brings. Together, we will explore the gaps, including where patient input is lacking.
Our speaker panel:
Paul Affleck, UK Colorectal Cancer Intelligence Hub Programme Manager, Independent Specialist Ethics Member of the Independent Group Advising on the Release of Data (IGARD) and Lay Member of the Ministry of Defence Research Ethics Committee (MODREC)
Dr Alex Bailey, Programme Manager, Medical Research Council Regulatory Support Centre
Patient Representative, Advisory Group Member, use MY data
Dr Elizabeth Lemmon, Research Fellow, Edinburgh Health Economics, University of Edinburgh.
There will be plenty of time for questions from delegates, together with a series of polls and votes seeking views on key questions. We will use these to identify a call to action, as we have done with our previous events.
The webinar is open to all and free to attend.