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Ask An ACHA Peer Mentor: Clinic Directory, Accreditation and Empowerment #ACHACares
Did you know that ACHA has resources and programs that help to empower you in your care? If you want to learn more, join ACHA Peer Mentors, Emily W and Ryan S as they answer your questions about the updated ACHA Clinic Directory. They will also talk about how ACHA ACHD Accreditation benefits you as a patient.

This webinar is made possible in part by an unrestricted educational grant from Janssen, Inc. Pharmaceutical Companies of Johnson & Johnson.

Mar 17, 2021 07:00 PM in Eastern Time (US and Canada)

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Speakers

Emily W
ACHA Peer Mentor @ACHA
Emily was born in 1975. In her words....“In 2008, I was diagnosed with coarctation of the aorta and a bicuspid aortic valve after three years of improper diagnoses. Within six months, I had a repair for the coarctation. I was 33 years old and in the middle of graduate school. Despite the shock and anger I felt, I knew that there was only one way forward—to keep taking care of myself. I hike, I do yoga, and I cook and bake healthy things! Even with all the different diagnoses and symptoms among CHD patients and their support teams, there are several things that we all need: ongoing care, emotional support and a healthy lifestyle.”
Ryan S
ACHA Peer Mentor @ACHA
Ryan S was born in 1985. In his words….”Like many kids of my generation, I was diagnosed with congenital heart disease when my pediatrician heard a murmur and I had difficulties feeding at home. At 6 months of age, I was diagnosed with tetralogy of Fallot and at 9 months, I was surgically repaired in Birmingham, AL by Dr. Alberto Pacifico. To this date, I have been blessed to have only had this one surgical procedure. I am not naive to think that this will always be the case and recognize the importance of advocacy for CHD and for our community. The H2H Peer Support Program is a beautiful picture of advocacy and community and it is a great honor to be a part of it. I view CHD as a diagnosis and not my whole identity and would love to walk with other CHD patients in viewing themselves as such.”