Philip McCallion, PhD, Temple University
The first wave of COVID-19 has now morphed into spikes and hotspots and a possible second wave. Much attention has focused on hospital care and risk in nursing homes. People with intellectual and developmental disabilities have also been at risk, and their experiences with accessing testing and receiving care has varied.
Among people with intellectual disabilities, those with or at risk of dementia are considered particularly vulnerable. Data is beginning to emerge not just on health consequences and mortality, but also on changes to programming and residence and their related implications for social isolation and quality of life. These are early days in terms of data but the potential for an extended pandemic mean we need to be looking at what data suggest should be next steps.
1. Understand the linkage between COVID-19 and dementia for people with intellectual and developmental disabilities
2. Learn about issues of differential access to COVID-19 testing and treatment for people with intellectual and developmental disabilities
3. Understand the consequences of COVID-19 related shutdowns for people with intellectual and developmental disabilities and dementia
Audience: Researchers and educators; agency leaders; multidisciplinary professionals, families; self-advocates