Newborn screening is the process of testing newborn babies for serious, but treatable, conditions including Gaucher disease. This webinar will present the basis, benefits, experiences and working with governments to get funding. Most of our member countries have no newborn screening for Gaucher and very little newborn screening at all, especially for lysosomal storage diseases.
Our three panellists will discuss and share their knowledge and experience from different perspectives: Prof Alberto Burlina, Centro di Riferimento Regionale per le Malattie Metaboliche Ereditarie (Italy); Dr Juana Inés Navarrete MD Head Department of Genetics Hospital Central Sur PEMEX and Professosr of Genetics Faculty of Medicine Universidad Nacional autónoma de Méxicoand Dylan Simon, Everylife Foundation (USA).
* The meeting will be translated 'real time' into Spanish!