You cannot register for this webinar

This webinar has ended. Thank you for your interest.

Topic
Advancing Rare Disease Knowledge Through Global Collaboration
Date & Time

Selected Sessions:

Feb 27, 2025 11:00 AM

Description
Join us for a special webinar to celebrate Rare Disease Day. Hosted by the GA4GH Rare Disease Community of Interest, the webinar will focus on collaborative efforts to advance rare disease knowledge and enhance global strategies for patient engagement. Our speakers include Daria Julkowska, Coordinator of the European Rare Diseases Research Alliance, and Charlene Son Rigby, CEO, Global Genes. The webinar will also feature a discussion moderated by Heidi Rehm, Chair of GA4GH. Together, our guests will share their perspectives on driving innovation, fostering collaboration, and empowering patient communities in the rare disease space. Attendees will also learn about the work of the GA4GH Rare Disease Community of Interest, ways that they can get involved, and how the community intersects with the needs of international rare disease initiatives.