Healthcare providers often talk about “outcome measures” during clinic visits or as part of research trials. What is their purpose and why do they matter? This webinar will review common outcome measures, why they’re used, and why they can be so important for patients, clinicians, and researchers. The webinar will be geared towards those living with LGMD and help them to understand the basics of outcome measures.
Dr. Lindsay Alfano is a physical therapist with expertise in the care and evaluation of patients with neuromuscular disease including outcome measure development, evaluation, and administration. She plays an integral role in planning and designing clinical trials and contributes to protocol development, outcome measure selection, statistical analysis, and interpretation for ongoing clinical trials. Dr. Alfano serves on an international consortium of neuromuscular physical therapy experts that provide industry-standard training and reliability for multisite international trials. Her research goals focus on standardizing training in rare disease, as well as developing novel outcome tools to measure change in movement abilities while minimizing the burden of testing.
Thank you to Sarepta Therapeutics for sponsoring the GRASP LGMD series with the Speak Foundation. The Speak Foundation is the voice representing all forms of Limb Girdle Muscular Dystrophy.