Hear directly from experts from the PNOC AT/RT Working Group about the current state of research and clinical trials for AT/RT. Join Dr. Ashley Margol, Dr. Alyssa Reddy and Dr. Eric H. Raabe, who are dedicated to changing the outcomes for children and young adults diagnosed with AT/RT.
Atypical teratoid rhabdoid tumor (AT/RT) is a rare, malignant tumor that occurs in the brain and spinal cord of young children. AT/RT can look like many other tumors under the microscope and is diagnosed based on the presence of a mutation in SMARCB1, or rarely SMARCA4. Unfortunately, despite aggressive multi-modal therapy, children with this disease still have a poor prognosis. Fortunately, there is growing community of physicians and researchers dedicated to furthering our understanding of this disease and improving survival for children with AT/RT.
The AT/RT working group is a collection of physicians and scientists who have expertise in AT/RT and are dedicated to improving the outcomes of children with these tumors.
We are developing a clinical trial for patients with newly diagnosed AT/RT that will allow us to determine if there are clinical and/or molecular features associated with survival. Our group is working on several clinical trial options for children with progressive/recurrent disease.
For more information visit: https://pnoc.us/research-groups/