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Transforming Rare Disease Across the Asia Pacific
• To represent patient interests in global entities and initiatives and to serve as a valuable resource to member organizations
• Develop skills and strategies for advancing rare diseases with the public, policy and decision-makers, rare disease patient groups, healthcare providers, industry, and other stakeholders
• To improve diagnosis, care, and management of rare diseases
• To understand the unmet needs about social support in APAC rare disease community
• Gain knowledge on global and regional initiatives on rare disease frameworks
• Gain knowledge about the progress and highlights from the APAC workshop
• To include discussion on national strategic plans for rare disease patient organizations via core members in APAC region
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