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The Importance of a patient registry and why to participate
Robin Forbes will be hosting this important webinar about different patient registries, and the importance of registering for each one.
Each registry will be for a specific purpose, and this webinar will tell you all about the Australian SMA Patient registry versus the SMA Community Registry (through SMA Australia), a valuable and informative session.
Robin is an Associate Counsellor who has worked in the multidisciplinary neuromuscular clinic at the Royal Children’s Hospital in Melbourne since it began in 2008.
This clinic oversees the care of more than 400 children with a n variety of neuromuscular disorders.

May 4, 2021 07:30 PM in Canberra, Melbourne, Sydney

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Webinar is over, you cannot register now. If you have any questions, please contact Webinar host: Julie Cini.