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Making Sense & Science of CMT Symptoms

“Is this symptom related to CMT?”

This is a frequent question asked by many individuals living with CMT and their loved ones. Most of us are familiar with the most common symptoms of CMT, such as foot drop & hand weakness. However, many less-recognized symptoms can be just as disruptive to our lives but have not yet been studied or linked to CMT; the rarer the symptom, the more uncertain and isolated we may feel.

How do we know if our symptoms are CMT-related, and how can we drive research to better answer this question?

“Making Sense & Science of CMT Symptoms”

This 90-Min LIVE Webinar will include:

Is my symptom CMT-related?
CMT symptoms checklist
Most common CMT signs & symptoms
Less common symptoms
Finding support from Patient Resources

The importance of converting CMT-related social media discussions into structured queryable data

CMT Advocate Kenneth Raymond shares his experience & expertise

How does HNF turn symptoms into science?
The latest CMT symptom stats
How GRIN improves CMT clinical trials
NEW Platform demo - Creating an account
Sneak peek at CMT surveys
How data is shared & used by researchers & industry

LIVE Q&A

Mar 1, 2023 07:00 PM in Eastern Time (US and Canada)