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ISTH Nurses Webinar: Evolution of Hemophilia Care

Oct 17, 2022 01:30 PM in Eastern Time (US and Canada)

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Regina Butler
Regina Butler, RN-BC, is the clinical manager for the Division of Hematology, director of the Mid-Atlantic/Region III Hemophilia Treatment Centers and the CHOP Hemostasis and Thrombosis Center nurse coordinator. She joined the Division of Hematology as the hemophilia nurse coordinator in 1973. She has served as clinical manager of the Division since 1993. In her role, Butler supervises clinical staff in the disciplines of nursing, social work and physical therapy. Over the course of her career, Butler has published numerous articles and presented on hemophilia and bleeding disorders across the country and around the world. She has served as the Regional Director of Mid-Atlantic Region III Hemophilia Treatment Centers, operated out of the Hemophilia and Bleeding Disorders Program at CHOP, since 2009.
Anne-Louise Cruickshank
Anne-Louise’s commitment to Hemophilia Care began in 1991 when she worked at the Paediatric Haematology Unit at Johannesburg Hospital. In 1996, she was awarded the Arthur Robertson travelling fellowship by the South African Haemophilia Foundation (SAHF). The fellowship gave her the opportunity to travel to Canada for highly specialised training at the Hospital for Sick Children and St. Michael's Hospital. For the past 20 years at the of University of Cape Town based at Groote Schuur Hospital, A-L co-ordinates comprehensive care for patients with the bleeding disorder hemophilia in the Western Cape Province, including implementing and coordinating the national outreach program. She is currently the Secretary of the SAHF Medical and Scientific Advisory Council and a member of the South African Haemophilia Nurses Committee and a member of International Society for Thrombosis and Haemostasis Nurses Committee.
BJ Ramsay
BJ was born in Scotland and is a duel New Zealand citizen. Making him a bona-fide Sc-iwi. He is the Haemophilia Clinical Nurse Specialist for the Wellington Region of New Zealand. He has worked as a haemophilia Nurse specialist for over 20 years first in the Kent Haemophilia Centre, Canterbury, England, then in Wellington, NZ since 2008. BJ has a particular interest in the psychosocial aspects of care in haemophilia, the impact it has on people with haemophilia and their families. He is also fascinated by the role of the multi-disciplinary team (MDT) in haemophilia care and loves to learn from the various specialities he interacts with. He is keen to enlarge the MDT that regularly interacts with haemophilia patients and to improve relationships and communication between them and the haemophilia core team. Seeking to promote a holistic care environment and a more seamless and co-ordinated network of haemophilia management to our patient group.
Erica Crilly (Moderator)
RN MN NP (peds)
Erica has been providing care as a Nurse Practitioner for the past 18 years to children and families affected by inherited bleeding disorders in Vancouver, Canada. She is currently an adjunct professor at the University of British Columbia, School of Nursing and has also been an active member of the Canadian Association of Nurses in Hemophilia Care (CANHC) for many years. Erica has authored numerous publications and given many presentations in the area of inherited bleeding disorders. She has also been the nursing voice on several occasions for multi disciplinary national stakeholder groups for Canadian Blood Services and the Canadian Hemophilia Society. Her specific areas of interest include value based health care, family centered care and youth mental health.