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Topic

RARE Rev-inar Episode 005 Understanding aTTP from a multi-stakeholder lense

Description

Sponsored by Sanofi

Recording Duration

01:12:00

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This is a webinar hosted and run by RARE Revolution Magazine sponsored by Sanofi. By submitting your information you understand that either company may contact you in the future, but that you may unsubscribe at any time.

Speakers

Dr Shruti Chaturvedi

Associate professor of medicine @Johns Hopkins University

Dr Chaturvedi is an associate professor of medicine at Johns Hopkins University. She specialises in the care of adults with thrombotic microangiopathy, particularly aTTP.

Claudia Caminiti

Patient advocate

Claudia Caminiti is a caregiver for a loved one living with aTTP. She joins the panel to offer insights from her unique perspective.

Anise Banks

Patient Advocate

Anise Banks is a person living with aTTP. She adds her perspective from her experience of being diagnosed and living with the condition

Founder @TTPNetwork

Jo is founder of the TTPNetwork, a patient support group led by patients for patients and their families.

Daniel-Anibal Garcia Diego

President @Spanish Federation of Hemophilia FEDHEMO

Daniel-Anibal Garcia Diego is president of the Spanish Federation of Hemophilia FEDHEMO. An organisation whose objectives are to improve the quality of life of people with haemophilia and other blood disorders.

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Message preview	Hi there, You are invited to a Zoom webinar. When: Mar 30, 2023 01:30 PM London Topic: RARE Rev-inar Episode 005 Understanding aTTP from a multi-stakeholder lense Register in advance for this webinar: https://us02web.zoom.us/webinar/register/WN_eZ1M00SdQu-Jw7GWkDI1bA After registering, you will receive a confirmation email containing information about joining the webinar. ---------- Webinar Speakers Dr Shruti Chaturvedi (Associate professor of medicine @Johns Hopkins University) Dr Chaturvedi is an associate professor of medicine at Johns Hopkins University. She specialises in the care of adults with thrombotic microangiopathy, particularly aTTP. Claudia Caminiti (Patient advocate ) Claudia Caminiti is a caregiver for a loved one living with aTTP. She joins the panel to offer insights from her unique perspective. Anise Banks (Patient Advocate ) Anise Banks is a person living with aTTP. She adds her perspective from her experience of being diagnosed and living with the condition Jo (Founder @TTPNetwork) Jo is founder of the TTPNetwork, a patient support group led by patients for patients and their families. Daniel-Anibal Garcia Diego (President @Spanish Federation of Hemophilia FEDHEMO) Daniel-Anibal Garcia Diego is president of the Spanish Federation of Hemophilia FEDHEMO. An organisation whose objectives are to improve the quality of life of people with haemophilia and other blood disorders.

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