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RDD Webinar: How to effectively approach media to boost your Rare Disease Day campaign
Would you like to know how to work with media to get your message heard by your target audience?
Media coverage can help develop your communication and raise awareness of your Rare Disease Day events. This webinar will outline the importance of traditional media and help you to better understand what journalists need to run your story for Rare Disease Day. Our national partner organisations, from USA, Croatia and Argentina, will offer tips and tactics to grab the attention of journalists.


The webinar will cover:

Communications, Science, Chan-Zuckerberg Inititiative

Case studies from National Alliance partners
- Lesli Nordstrom, USA – National Organization for Rare Disorders (NORD)
- Tamara Kvas, Croatia – Rare Diseases Croatia
- Roberta Anido de Pena, Argentina – Federación Argentina de Enfermedades Poco Frecuentes (FADEPOF)

Question and Answer session with panellists

Dec 9, 2020 04:00 PM in Paris

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