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Patient Engagement in Research: Why Does It Matter? #ACHACares
Have you participated in a research study before or are you interested in taking part in one? If so, you don’t want to miss this webinar. Dr. Ari Cedars and ACHA Peer Mentors Marissa M. and Dominique L. will bring you up to date about the status of research in ACHD. They will also talk about the vital role patients play as partners in the research process.

This webinar is made possible in part by an unrestricted educational grant from Janssen, Inc. Pharmaceutical Companies of Johnson & Johnson.

Aug 4, 2021 07:00 PM in Eastern Time (US and Canada)

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Speakers

Ari Cedars, MD
Director, Adult Congenital Heart Disease @John Hopkins Hospital
Dr. Cedars is a member of the ACHA Medical Advisory Board and also an Associate Professor of Medicine and Pediatrics at John Hopkins School of Medicine. He has an interest in patient-centered care and care individualization based on the ways that the molecules and genes in the body change in different types of congenital heart disease. He also has an interest in mechanical circulatory support and transplant in ACHD.
Dominique L
Peer Mentor @ACHA
Dominique L was born with HLHS, TGA, pulmonary stenosis, an ASD and a VSD. She had three open heart surgeries by the age of three, including the Fontan. She works as a registered behavior technician while receiving her master’s in psychology to pursue a career as a behavior analyst. Because of her countless experiences with procedures, hospitalizations, and doctors’ visits, she also founded a company which makes products that promote self-advocacy for kids within healthcare environments. As an H2H Peer Mentor, she advocates for the importance of mindfulness and self-advocacy when dealing with chronic illness.
Marissa M
Peer Mentor @ACHA
Marissa M was born with six complex heart defects, including a single ventricle and had three surgical procedures before the age of two.. She is a registered nurse in the pediatric cardiac intensive care unit and is also enrolled in a masters nursing program. Marissa lives life to the fullest, and never allows her heart condition to define who she is. As an H2H Peer Mentor, she truly enjoys empowering others to be their own advocate when they need it the most.