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Body Image in Adults with Congenital Heart Disease #ACHACares
Do you worry what others think about you when they see your scar(s)? Are your relationships affected by your scars? Do you try to hide them from others? Have you ever sought out treatment to make them less visible? If you answered yes to any of these questions, you should attend this webinar. It will cover current research on body image concerns among individuals with congenital heart disease. It will also include the perspectives and personal stories of patients with cardiac surgery scars. A variety of experiences with cardiac scarring will be discussed. Additionally, the impact of these experiences on the lives of patients will be explored. To learn more, please join Mr. David Highfill and Dr. Jamie Jackson for this enlightening webinar about body image and congenital heart disease.

Sponsorship support provided by Janssen, Inc. Pharmaceutical Companies of Johnson & Johnson

Jul 13, 2022 07:00 PM in Eastern Time (US and Canada)

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David Highfill, LCSW, MSW
Licensed Clinical Social Worker @Ahmanson/UCLA Adult Congenital Heart Disease Center & Private Practice
David Highfill is a Licensed Clinical Social Worker with over 25 years of experience working with a variety of populations across multiple settings including: organ transplant (heart, lung, liver), HIV/AIDS, LGBTQ, renal disease, dialysis, the Veteran’s Administration, Home Health, Hospice, senior care, PTSD, substance abuse, grief and loss, and relationship issues. David is currently working with the Ahmanson/UCLA Adult Congenital Heart Disease Center while maintaining a private therapy practice and supervising master’s level social workers as they move toward licensure. David is uniquely familiar with many of these issues, as he is also a CHD patient who underwent heart transplantation at UCLA in 2012.
Jamie Jackson, PhD
Assistant Professor of Pediatrics and Psychology and licensed clinical psychologist @Nationwide Children’s Hospital and The Ohio State University and Columbus Ohio Adult Congenital Heart (COACH) Program
Dr. Jamie Jackson is a member of the ACHA Medical Advisory Board. She is an Assistant Professor of Pediatrics and Psychology at Nationwide Children’s Hospital and The Ohio State University. She is also a licensed clinical psychologist who collaborates with the Columbus Ohio Adult Congenital Heart (COACH) Program. Dr. Jackson has multiple research interests, including identifying factors that help adolescents and young adults with CHD better care for themselves independently.
Ken W
Ken W. was born in 1981 with tetralogy of Fallot and like many adults with CHD, thought he had been fixed and was lost to cardiology care as an adolescent. He returned to care in August 2011 following a biking accident. Ken became a Peer Mentor to help other adults with CHD and their family members navigate the challenging and overwhelming aspects of life with congenital heart disease.
Marissa M
Marissa M is an ACHA peer mentor who was born with six complex heart defects, including a single ventricle and had three surgical procedures before the age of two. She is a registered nurse in the pediatric cardiac intensive care unit and recently completed a masters nursing program. Marissa lives life to the fullest, and never allows her heart condition to define who she is. As a H2H Peer Mentor, she enjoys empowering others to be their own advocate when they need it the most.
Rachel S
Rachel is 36 years old and was born with Hypoplastic Left Heart Syndrome. She had a Norwood/Fontan 3-stage procedure by Dr. Bill Norwood in 1986. She is originally from Cleveland but moved to Los Angeles in 2016, and in 2019 underwent a Heart and Liver Transplant at UCLA.