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Topic

ARC Talks Webinar: An Overview of ARC’s Research Programs and Results of the Patient Community Survey

Description

In this month’s ARC Talks webinar, we invite you to hear from ARC’s research team as we start an exciting year. Kristen Hsu, Executive Director of Research, and Sabrina Rebello, Research Manager, will provide an overview of ARC's research programs, share findings from our 2022 community survey results, and highlight the future direction of ARC's research.

If you would like to learn more about ARC’s research focuses, be sure to join us!

There will be a Q and A section following the presentation.

Time

Jan 26, 2023 12:00 PM in Eastern Time (US and Canada)

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Message preview	Hi there, You are invited to a Zoom webinar. When: Jan 26, 2023 12:00 PM Eastern Time (US and Canada) Topic: ARC Talks Webinar: An Overview of ARC’s Research Programs and Results of the Patient Community Survey Register in advance for this webinar: https://us02web.zoom.us/webinar/register/WN_hpN4_RyJR7af2lhYBwkI_w After registering, you will receive a confirmation email containing information about joining the webinar. ---------- Webinar Speakers Kristen Hsu (Executive Director of Research @Amyloidosis Research Consortium) Kristen has over ten years of clinical operations experience within the pharmaceutical industry. She has a wealth of experience in managing complex global clinical trials for novel treatments of rare diseases. Kristen is building and overseeing ARC’s clinical research program and manages a prioritized portfolio of vital research. Sabrina Rebello (Research Manager @Amyloidosis Research Consortium) With an extensive background in research and epidemiology, Sabrina is skilled in the identification and quantification of health challenges using epidemiological methods. At ARC, Sabrina is responsible for designing, conducting, analyzing, and overseeing qualitative and quantitative research that seeks to better describe the various experiences of amyloidosis patients and their caregivers, as well as the impact the disease has on multiple domains of life. She also Oversees the development of a disease-specific patient reported outcome (PRO) measure for patients with amyloidosis.

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