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RDI Rare Disease Day Event

WELCOME & INTRODUCTION:

KP Tsang, RDI Council Member & President Rare Diseases Hong Kong
Lisa Sarfaty, Vice President of Community Engagement, National Organization for Rare Disorders (NORD), USA

ANIMATION - WHAT IS A RARE DISEASE?:
Animated video on the OPERATIONAL DESCRIPTION OF RARE DISEASES

#SEERARE - A TOUR OF THE WORLD:
Messages from rare disease civil society groups on six continents

RDI FIRESIDE DISCUSSION - Why visibility matters FOR THE GLOBAL COMMUNITY?:
Dolores Cvitičanin, RDI Public Affairs Manager
Hlawulani Mkhabela, RDI Strategic Engagement Manager

Feb 28, 2023 02:00 PM in Paris