• Pernille Weiss MEP - Co-chair
• Susana Solís Pérez MEP - Co-chair
• Dr Jennifer Lyn Baker, European Association Study Obesity (EASO)
• Birgit Bauer, Patient Expert and Person Living with Multiple Sclerosis
• Michele Cecchini, Public Health Lead, OECD
• Fede Luis Moya, Patient Representative, Asociación Bariatrica Híspalis
• Dr Kremlin Wickramasinghe, WHO Europe Representative
The Policy community eagerly awaits the publication of the European Commission’s Proposal for an EU Health DataSpace. The stated aims are ambitious:
• Primary usage of health data:
- promote safe exchange of patients’ data (including when they travel abroad) and citizens’ control over their health data
- support digital health services
- clarify the safety and liability of artificial intelligence in health.
• Secondary usage of Data:
- support research on treatments, medicines, medical devices and outcomes
- encourage the access to and use of health data for research, policy-making and regulation, with a trusted governance framework and upholding data-protection rules
The MEP Interest group on Obesity & Health System Resilience puts this in context and asks stakeholders the burning question: How can an EUHDS practically contribute to building heath systems resilience through the lens of obesity?
Are we addressing the right research questions? Are the correct data parameters in place to be able to monitor health outcomes on obesity beyond BMI? How can we ensure a joined-up health data approach? Who is accountable and responsible for the data on obesity, the impact of both primary and secondary data usage and how data on obesity generated can be made comparable across Europe. It will also be an opportunity to discuss concerns over privacy and open access to health data as it relates to the GDPR.