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'Forgotten Patients, Overlooked Diseases and Potential Health Solutions’
Treatment and support are available for most common diseases. For those suffering from a rare condition, there will usually be a society or self-help organisation. Member of the research and medical communications community are generally familiar with helping these groups.
By comparison, there is a sizable proportion of people in the middle who may have complex, medically unexplained symptoms but no clear diagnosis. It estimated that up to 50% of GP consultations do not result in a clear diagnosis. Often, affected individuals feel overlooked as they get shunted from one specialty to another, endure countless tests and are tried on a range of unsuccessful treatments. People do not know where to turn and money and resources are wasted.
Our hope is to highlight this ‘Forgotten’ group, examine with examples why the patient journey can go wrong and explore potential health solutions.

14:00-14:10: Introduction-Dr Adrian Tookman & Dr Steven Walker
14:10-14:30: The forgotten patient journey and where it can go wrong-Katia Chrysostomou, Richard Stephens & Christianne Forrest (patient story)
14:30-14:50: Unexplained symptoms in A&E and primary care-Dr Eva Diehl-Wiesenecker & Dr Carmen Schmechel
14:50-15:10: Medical ethics perspective: the importance of making a diagnosis even if there is no cure-Dr Chantal Patel, Dr Christine Weiler-Normann & Dr Kiran Jani
15:25-15:45: The physician’s perspective; The importance of patient stories and diagnostic uncertainty-Dr Adrian Tookman & Dr Minha Rajput-Ray
15:45-16:05: Perspectives of patients, families, and society; The cost of living with forgotten diseases and unexplained symptoms-Dr Jacques Tamin, Franzi Koenig-Paratore & Rev Dr Peter Speck
16:05-16:25: How might forgotten health initiatives and new technology help the patient journey-Achim Kautz & Julia Eder
16:25-16:50: Panel discussion; New thinking and solutions-Minha & Katia
16:50-17:00:Summary-Adrian & Steven

Supported by MedComms Networking #Medcomms

Dec 14, 2022 02:00 PM in London

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