Webinar is on 17th March 2021, at 17.00h till 18.00h CET. (Please change your time zone while filling registration form)
Webinar language is English. (There is translation from English to Turkish)
Frank Buckley - CEO of Down Syndrome Educational International, UK and Down Syndrome Education USA.
Gert de Graaf - scientific and educational officer of the Dutch Down Syndrome Foundation in The Netherlands.
How many people with Down Syndrome live in Europe as a whole, and how many in the different European countries? What is their age distribution? How have changes in survival rates influenced the numbers alive? What is the effect of prenatal testing and selective terminations on the number of live births of children with Down Syndrome? Is the number of people with Down Syndrome alive decreasing due to selective terminations? And, how do individual european countries compare?
In their study „Estimation of the number of people with Down syndrome in Europe“ the authors Gert de Graaf (Netherlands), Frank Buckley (UK) and Brian Skotko (USA) worked on data from 1901 until 2015.
They have stitched together registries across Europe to calculate a country-by-country estimate of the number of people with Down syndrome, the number of selective pregnancy termination because of Down syndrome, and the impact of such terminations on birth prevalence and population prevalence.