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RDI Rare Disease Day Policy Event:
Calling for a UN Resolution on Persons Living with a Rare Disease and their Families .

“WHY A UN RESOLUTION AND WHY NOW”

PRELIMINARY AGENDA

• Welcome from Rare Diseases International

• Official Rare Disease Day 2021 Video

• Opening Remarks from the NGO Committee for Rare Diseases

• Call for a UNGA Resolution on Rare Diseases

• Testimonies from Person’s Living with a Rare Disease around the world

• Video – Rare Diseases at the United Nations

• Panel Discussion: “Why a Un Resolution and Why Now”

• Message from International Rare Disease Champion

• UN Member States Support

• Key take home message and next steps

Mar 4, 2021 02:00 PM in Paris

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