Siblings of children diagnosed with a severe childhood epilepsy, known as a developmental and epileptic encephalopathy (DEE), often play an integral role in the care of their brother or sister, learning patience and compassion at an early age. However, the mental health impact on these siblings can be much greater and often overlooked.
As a result of the daily challenges that these siblings face, they may experience and exhibit very strong emotions – such as guilt, anger, sadness, fear, anxiety, and depression. The Siblings Voices Study – which included siblings in a variety of age ranges was created to help families understand more about what it is like to have a brother or sister with severe epilepsy and how these siblings adapt.
This webinar will discuss some of the key research findings of the Siblings Voices Survey, including some strategies to help improve the mental well-being and social development of siblings and available resources for families.